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Editors note: The original link to this story at http://members.aol.com/jpnge/donna/illness.html
is no longer valid. Please contact us if you have the new website address.
Saturday, March 3, 2001
Donna did her exercises in the morning like she had been doing regularly
for awhile. Afterwards she felt a little achy and feverish, like she
was either coming down with the flu or sore from the workout. By 8:00pm
that evening her left arm was so painful she decided to go to the emergency
room with her husband, Jed. Once at the hospital, they asked her on
a scale of 1-10, with 10 being the worst, what was her pain? She said
it was a 10. They gave her a shot of morphine for the pain. It brought
her pain down to a 7. They took a chest x-ray and treated her for sore
muscles, sending her home at 3:00am with prescriptions for Valium and
Percocet.
Sunday, March 4, 2001
Around 9:30am, Jed brought Donna back to the hospital because the pain
had become excruciatingly unbearable (normally Donna has a high tolerance
to pain and doesn't like going to the hospital for anything). She was
in the emergency room for about an hour as they tried to figure out
what was causing her pain. At first they thought it might be her spleen.
They had a hard time drawing blood from her veins but eventually they
were able to. They were giving her oxygen and had her hooked up to machines
to monitor her vital signs. She is asthmatic and had to use her inhaler
once while there but was later given a nebulizer treatment. At this
point she was experiencing an enormous amount of pain in her arm, lower
back, and chest. A redness that looked like a rash was spreading to
all of the areas of pain, as they literally stood there and watched
with amazement. At about 1:45pm she was taken for a CT scan and then
brought up to ICU. Around 2:30pm the doctors realized she was having
trouble breathing and informed her they were going to put her on a ventilator
for a couple of days (48hrs.) and that she would be put to sleep for
2 days. At this time, Jed, her family and friends were told that the
doctors believed she had Group A Streptococcal infection. Dr. Treadwell,
the infectious disease doctor, explained that this is what they thought
she had, which is a very serious infection. He told everyone this was
the infection that killed Jim Hensen in a matter of 24hrs. We were told
everyone who had been in contact with Donna within the last week should
be given a strep test as soon as possible. Donna was worked on constantly
from the time she was brought up to ICU. She was given all sorts of
fluids and medication, blood pressure medication because her blood pressure
was drastically going down, a few different antibiotics to fight the
infection. At about 10:30pm, the hospital staff was losing all hope
for her survival. They told the family that if there were any family
members that weren't already at the hospital then they should be contacted,
because they feared she wasn't going to survive the night. We were able
to go in periodically to visit her with sterile gloves and masks for
her protection. There was always somebody outside her ICU room keeping
vigil. The nursing staff and doctors were constantly keeping us informed
of how she was and what they were doing. Over the next couple of hours
all of her major organs began shutting down as family and friends were
frantically trying to get in touch with her three oldest daughters and
her father in Florida. There was a huge snowstorm bearing down on New
England with 2-2½ feet expected to accumulate. Airports were
shutting down but her father found a flight and arrived at the hospital
around 3:00am. A priest was brought in to do the anointing of the sick.
Monday, March 5, 2001
To the amazement of the hospital staff she had survived the night. By
morning she had begun swelling up due to all the fluids that were going
into her body. A catheter was put in her heart to monitor its functions
because it wasn't pumping properly. Her lungs were filling with fluid
and her white blood cell count had plummeted to a count of 1. They were
giving her transfusions of frozen plasma because her blood was not clotting.
They had her on 4 different blood pressure medications, one was to help
keep her kidneys from failing. Her fingers and toes were turning blue
due to the blood pressure medications they were giving her to keep her
major organs from completely shutting down. They had been trying to
get her stable enough to be transported to a Boston hospital, but couldn't.
Her body had gone into toxic shock and had become septic. The bacteria
was destroying the majority of skin on her left side from under her
arm down her left chest wall onto her thigh. Her blood pressure had
gone down to 30 but was brought up to around 60.
Tuesday, March 6, 2001
She made it through another night with little to no improvement. Her
kidneys were beginning to fail and they were talking about putting her
on dialysis in the morning. The doctors told us that if she survived
this she wouldn't walk out of the hospital on her own because her lungs
and heart are so damaged from all of this. Her lungs were so full of
fluid they were going to put a tube in each side to drain them in the
morning. They spent the day and night trying to keep her organs functioning
and her blood pressure from dropping.
Wednesday, March 7, 2001
Success again! She made it through another night with little to no improvement.
Her fingers and toes kept getting darker in color and her kidneys were
functioning on their own again. They held off putting her on dialysis.
They decided to put a drain in only her left lung for the time being
and found bacteria was draining from that lung. They were giving her
protein and platelets intravenously, actually there was roughly 10 bags
of fluids being given to her at the same time all of the time. Her blood
pressure had gone up to level of in between 80 and 90. Around noontime
the doctors were finally starting to feel that there was hope and said
she wasn't going backwards but was heading in the right direction. They
were going to do an ultrasound on her feet because they were concerned
with the lack of circulation to the toes and fingers due to the blood
pressure medication. The bacterium was rapidly destroying her skin and
sores had begun to ooze and drain. They called in a skin specialist
to make sure they were treating the sores correctly. The bacterium was
spreading and was contributing to her septic state. The infection was
in her blood and was the cause of her body shutting down. Dr. Treadwell
felt that surgery would possibly help and was trying to get in touch
with Mass General in Boston or UMass Memorial in Worcester. He said,
if a doctor thought they could help her then they would MedFlight her
there, provided she was deemed stable enough for the flight. Her immune
system was still reacting to something foreign in her body and if they
removed the infected areas it could possibly help her fight against
the infection. There wasn't anymore that the hospital could do at this
point. She needed to be transferred into a burn unit because the infection
was like having 3rd degree burns. Around 5pm Dr. Pfeifer at UMass Memorial
accepted her and MedFlight was notified. We waited for MedFlight to
arrive and confirm if she was stable enough for the transfer. They confirmed
she was and they transported her to UMass by LifeFlight around 6:30pm.
Once at UMass she was being assessed by a team of doctors. She was given
more platelets and frozen plasma to help her ability to clot blood.
The doctor informed us that he would be removing a considerable amount
of tissue and he was not optimistic at all. Surgery was a high risk
and was given a 1 in 4 chance she wasn't going to survive it but without
it she would surely die. She was taken into surgery around 10:00pm.
Success again!!!! She made it through surgery. Dr. Pfeifer talked to
us once surgery was over and informed us he removed a significant amount
of tissue. He removed about 15% dead tissue and was disappointed he
didn't encounter any bleeding because that would have meant healthy
tissue. He did encounter bleeding when he reached the muscle. He explained
to us that removing the dead tissue was called debridement and it needs
to be done because otherwise it becomes a breeding ground for the bacteria.
He also told us they were going to put a tube into her right lung because
it had become full of fluid, but that the lungs looked good. Skin grafts
would be needed to cover were he had done the debridement in the weeks
to follow, but she was still in grave condition and he wanted to see
how she was in the morning. He explained to us that she was really puffy
and swollen and would continue to swell before getting better. She was
really puffy; someone compared her to the girl in the Willy Wonka movie
who blew up like a blueberry.
Thursday, March 8, 2001
She made it through another night!!! The swelling had gone down and
she looked better than the night before. Her blood pressure was still
too low. She still had no change and was in grave condition. She was
being monitored continuously and was given open toe boots for her feet.
Doctors told us she had a significant amount of damage from the infection
and her immune system had been stimulated against her body. She had
many specialists checking in on her and several teams of doctors tending
to her. She was given another CT scan because she had fluid in her abdomen.
Dr. Pfeifer tells us that she's not any worse than when she first came
in.
Friday, March 9, 2001
The antibiotics seem to be killing the infection even though its still
there, but surgery definitely helped. They are trying to wean her off
the blood pressure medicine because her fingers and toes are almost
black at this point. They have taken her off the sedation medication
and cut back on her oxygen intake from the machine. She is being given
morphine shots for the pain. She is responding now when poked at by
the staff. Things are looking up but they tell us she's still not out
of the woods yet.
Saturday, March 10, 2001
She was brought into surgery for more debridement from her upper arm
and a little bit on her chest under her left breast. The surgery went
well, they didn't remove too much tissue and the doctor said she looks
to be getting better. Her pupils are normal now but they told us there
are metabolic problems going on. Her blood pressure has been good lately
so they are taking away her blood pressure medicine. The nursing staff
said she's bottomed out and she's definitely getting better. Her blood
pressure went down when they took away her medication, so they gave
it back to her again. Blood pressure has been a roller coaster from
day one. She's still on antibiotics.
Sunday, March 11, 2001
Doctors said her kidneys are improving and most parameters are better.
Blood pressure is remaining at a good level and she's off the blood
pressure medication. Her use of oxygen has come down gradually and she's
being fed through a tube. The doctor said he's very positive although
she's still very ill. She's opening her eyes a little bit, although
they tell us she probably can't focus yet. They told us she's still
not out of the woods, but her lungs and kidneys are much better. They
can feel pulses in a lot of places now. She is starting to look like
herself again. The doctors aren't too sure if she will lose all her
fingers and toes due to lack of circulation, but we will have to wait
and see if they improve. She is in a special bed that has air control.
She's been turning her head when she hears someone talk loud; it seems
she knows when someone is there. She's still receiving morphine shots
for the pain.
Monday, March 12, 2001
They switched her to a morphine drip because she seemed to be agitated
from the pain when the morphine shots were wearing off. She has been
squeezing people's hands very lightly. Again, seems to know when someone
is visiting her. They took the catheter out of her heart, and they said
her heart looks much better. They have begun taking her off the ventilator
for ten minutes at a time, but she could only last 5 minutes today.
Tuesday, March 13, 2001
She was a little more awake today. She was given a bath, but it was
very painful for her even with the morphine. Her lungs have a little
bit of fluid in them again. Her debriding from Saturday looks good.
The doctor told us she will lose part of her fingers and toes and they
are very concerned about her right foot. She is very close to being
out of the woods. They took her off the ventilator, but again she only
lasted for 5 minutes.
Wednesday, March 14, 2001
She's moving around a lot today, arms and legs. She's awake a lot but
not answering any commands. Still moves her head when she hears people
talking. She's been sleeping well. Her heart rate and blood pressure
have gone up. Things are looking better and they say she's getting better
everyday, but she still hasn't been upgraded from grave condition. She
breathed on her own for almost 2 hours!! Today was a good day!!
Thursday, March 15, 2001
Today they started doing physical therapy to move her arms and legs.
Dr. Pfeifer is very encouraged by her condition lately. Her oxygen level
has been lowered to 25%. The doctor said they would hopefully start
skin grafting in 2 weeks. She seems to be going in the right direction.
Dr. Pfeifer said he sees her being in the hospital for at least another
month.
Friday, March 16, 2001
She's still at 25 % oxygen and a cuff is monitoring her blood pressure
every hour. She had new dressings put on today, so she's in a lot of
pain even with the morphine drip. Dr. Pfeifer said they are going to
take her into surgery on Monday to do some temporary skin grafting,
they are going to use plastic skin for 2 weeks. They are still very
concerned about her right foot, she may lose it along with the majority
of her fingers and toes.
Saturday, March 17, 2001
She's breathing on her own now!! Otherwise not much change from yesterday.
They are putting in a new, slimmer feeding tube in her nose.
Sunday, March 18, 2001
Her blood pressure dropped overnight so she was put back on blood pressure
medicine. She was breathing on her own until 7:00pm last night but needed
to be put back on the machine. She did breathe on her own for almost
7 hours. They turned her and redid her dressing so she's tired and uncomfortable.
Therefore they are not going to try to have her breathe on her own today.
They are back to monitoring her blood pressure on the machine again.
They are waiting to do demarcation on her fingers and toes, she will
most likely lose her right thumb but her left thumb looks okay. They
said they don't think they'll be able to save any of her right foot.
The doctors have come to the conclusion that her fingers and toes have
been damaged due to the septic state her body was in, not from the blood
pressure medicine. They are giving something for her asthma through
the ventilator. She is not following commands today, but she is feeling
pain and can hear. She's on sedation medication especially when changing
the dressings. Her wounds look clean and improving. Kidneys are good
and lungs are okay but she has a slight case of pneumonia, which is
normal for someone on a ventilator.
Monday, March 19, 2001
Instead of doing temporary skin grafts, they had to do more debridement
on her upper arm. They took some skin samples and looked under a microscope,
they found the samples to be healthy tissue that bled well. She had
spiked a fever and her blood pressure was down again. They did a CT
scan and some x-rays. Her nurse said she was a little worse then when
he saw her last on Friday. They decided to take the tube out of her
mouth and put in a tracheal tube instead, because they're afraid leaving
the tube in her throat might damage her vocal chords. Dr. Pfeifer also
thinks it's time to do something about her right foot. She's still not
out of the woods yet.
Tuesday, March 20, 2001
She's still pretty much the same as yesterday. They have scheduled surgery
for tomorrow to insert the tracheal tube and amputate her right foot.
Wednesday, March 21, 2001
Today she is very awake! They decided not to do the surgery on her foot
or the tube yet because she is doing better. The infection looks to
be gone and she is taken off the antibiotic medication. She's also back
on the blood pressure cuff. They took x-rays of her chest and the pneumonia
had improved. They are changing her dressing twice a day and giving
her versaid medication when doing so.
Thursday, March 22, 2001
Today was an awesome day!!! They took the ventilator tube out completely.
She actually said, "Can I go home now"? She is using an oxygen
mask but will switch her to a nasal line. She was moving around and
scratching her arm, she doesn't know the damage to herself yet. They
tried sitting her in a chair for about an hour but she didn't like it.
What a complete turnaround from a couple of days ago! Her daughters
went to visit her and she lit up when she saw them. They said "I
love you, Mom" and she mumbled "I love you, too".
Friday, March 23, 2001
She's getting better just as rapidly as the infection overtook her body.
She lit up when Jed walked in the room today. She sat in the chair for
a few hours today and they washed her hair. She had thought only a week
had passed while she was asleep but Jed informed her it had been 3 weeks.
Her right foot looks like it has more healthy tissue than they thought
and they think they might be able to save a lot of it.
Saturday, March 24, 2001
She was pretty much the same as yesterday, but more awake and she sat
in the chair a little longer. She was talking a lot and much clearer.
She has her sense of humor intact and wanted to make sure that the kids
were all set. She looks really good and is trying to be the best patient
because she wants to go home. She knows now a little bit of what is
going on. The doctors are filling her in and telling her what they are
planning on doing. They told her they were going to start skin grafting
next week, probably taking skin from her back to put on her chest and
arm. It seems they have told her that her fingers and toes are damaged.
She kept looking at her fingers and saying how heavy her hands were
to lift. All in all it was great to see her sitting up and talking to
everyone. What a great day today was!!!
Sunday, March 25, 2001
This was another good day!! She was talking a little more than yesterday
but sometimes incoherently. The feeding tube was removed and she actually
had soup and a diet sprite for lunch. Every day seems to be better than
the last, finally.
Monday, March 26, 2001
She talked on the phone today a couple of times. They allowed her to
talk on the phone for 5 minutes and she spoke to her two youngest children.
She has some flexibility in her fingers to hold things or to scratch
an itch. She still gets oxygen with something for her asthma through
a nose line. Today she had solids for lunch. They have told her that
she is scheduled to begin skin grafting on Friday. They will be removing
skin from her back to replace the skin on her chest.
Tuesday, March 27, 2001
Major hurdle today!! She was moved out of ICU, she's still in the burn
unit, but in a regular room. She is no longer requires oxygen or morphine
drips and says she's really not experiencing any pain. She is doing
exercises with her hands by flexing them to open and close. They have
a bar across her bed so she can practice trying to lift herself up and
strengthen her arms. She's eating regularly now; she had pot roast for
lunch and says the Hospital food's not all that bad (!).
Wednesday, March 28, 2001
She's doing great again today, each day forward is better than the day
before. Her exercises are doing wonders on her hands; she held a fork
and a spoon herself. She sat up in bed and hung her feet off the side
of the bed and pulled them back up onto the bed on her own. This is
a tremendous feat!! They are removing dead skin from her hands daily,
a little at a time, and they look so smooth and healthy underneath.
Thursday, March 29, 2001
Today is her oldest daughter Amber's 20th birthday and she was actually
able to call her to wish her a "happy birthday." She had a
lot of visitors today and enjoyed the company. She sat in a chair today
for a little while. They changed her dressing and gave her percocet
for the pain it caused. She's trying to prepare herself for surgery
tomorrow, she's a little nervous but that's understandable. They are
planning to remove skin from her thigh to replace skin on her chest
and cleaning up her hands by removing as much dead skin as possible.
Today the Local Framingham paper, The MetrowestNews, ran an article
on Donna and her battle with NF.
Friday, March 30, 2001
She was very anxious about today's surgery and didn't get much sleep
last night. She was taken down to surgery at 6:30am and it was completed
by 10:30am. She came through surgery absolutely wonderfully. They did
some skin grafting and actually had to do a little bit more debridement.
As for her hands, they decided to postpone any surgery on them until
later. FOX25-TV News contacted the family to do an interview, which
was broadcast on the 10:00pm news. Newscaster Bob Ward interviewed her
brother Joe, her father Joe and myself. They used a lot of pictures
that we provided, the majority of them were old but served their purpose.
We are grateful to Fox for posting the address of the trust fund on
their broadcast.
Saturday, March 31, 2001
WCVB-TV called this morning and also asked for an interview. Newscaster
David Muir interviewed her brother Joe, her daughter Amber, and myself.
Again, we are grateful for the assistance in making people aware of
the trust fund. She watched the Channel 5 broadcast from her hospital
room with Jed, Amber and Ashley. She's recovering from yesterday's surgery
and in a little bit of pain, which is understandable. Her left arm is
swollen and in a gauze sleeve that hangs from an IV stand.
Sunday, April 1, 2001
April Fool's Day!! Four weeks have passed since Donna walked into the
emergency room of Metrowest in Framingham. She has amazed everyone with
her recovery and will to survive. She feels better today and the swelling
in her left arm has gone down and she no longer requires the gauze sleeve.
She enjoyed a visit with her two youngest children Dewey and Taylor.
Monday, April 2, 2001
There is discussion of moving her to a rehabilitation center by the
end of the week, either Leonard Morse in Natick or Fairlawn in Worcester.
She's nervous about the transfer but looking forward to getting one
step closer to getting home. She is still continuing physical therapy
on her hands.
Tuesday, April 3, 2001
Another day of visitors and exercises with her hands. Her father Joe
was experiencing minor chest pains and as a precaution was admitted
to Metrowest overnight for observation. He was given a number of tests,
all of which he passed with ease and released the next day. Donna was
frantic with worry but was calmed by the confirmation that he was okay.
Wednesday, April 4, 2001
She actually got out of bed and into a wheelchair today. She was excited
to be able to leave the confines of her hospital room. She wheeled herself
down the hall a little bit, but quickly got tired out and was experiencing
some lightheadedness and asked to be returned to her room. But nonetheless
she was thrilled to be able to continue making strides towards recovery
and so was everyone else. They discussed with her the injuries to her
hands and how they plan on handling them. They also discussed that they
still think they will be able to save the majority of her right foot.
Thursday, April 5, 2001
She will be going to the Fairlawn Rehabilitation Center, sometime over
the weekend. Leonard Morse was ruled out because of their lack of a
burn unit
Friday, April 6, 2001
It's been finalized that she will be transferred to Fairlawn tomorrow
morning. She's anxious about the move and was given medication to help
calm her. She was disappointed she wasn't able to attend the annual
Spring Fling held tonight by her friends from Stapleton School. All
the proceeds from tonight's party were donated to Donna and her family
and there was a tremendous turnout. The catering was donated by Lloyd's
Dinner and her brother Joe was the DJ.
Saturday, April 7, 2001
This afternoon Donna was transferred to Fairlawn. She will be there
for three weeks for physical therapy and to gain her strength in both
muscle and diet. She will be in a wheelchair for awhile, and one of
the first steps will be to teach her how to get in and out of one. After
three weeks she will again return to UMass Memorial for more surgery,
skin grafts and the amputation of areas of her fingers and feet. Once
recovered from surgery, Donna will go back to the center for more rehabilitation.
She still has the dressings changed twice a day, which they say will
take place for quite some time. The areas of her skin grafts and wounds
have been very itchy, a sign that they're healing. She's waiting to
be given an air mattress as she had in UMass because the new bed at
Fairlawn is very uncomfortable. They also plan to put the circulation
boots back on her legs to help circulation. She is starting to come
to terms with what has happened to her and knows just how lucky she
is to have survived.
Week of 4/8/01-4/14/01
She has adapted quite well to the use of her wheelchair and can maneuver
herself in tight spaces. She can also now get out of bed and into the
wheelchair by herself. She attends physical and occupational therapy
almost daily, working on strengthening her arms and legs. She has hand
and leg weights that she keeps in her room to exercise with at her convenience.
The swelling in her left arm has gone down considerably and is being
strengthened by the exercises, but periodically she experiences cramping
in that arm.
Her donor sites on her right leg are healing remarkably well. The gauze
applied to aid the healing has peeled away and the skin is growing back.
Her injuries from the bacteria are also healing quite well. She has
been using her hands quite a bit, but they rather she didn't for fear
she may injure them further. They will clean up her hands in a couple
of weeks when she goes back to the hospital for surgery. Her feet are
still a concern. They are kept wrapped with gauze for comfort and protection.
One of her hospital aides had fun drawing on the gauze with a pen to
give the appearance of shoelaces, which Donna got a laugh out of. She
is not yet able to stand on her feet and will probably not be allowed
to until sometime after the surgery.
They are still trying to get her to eat more calories to maintain her
weight but most of the time she doesn't seem to have much of an appetite.
She has been drinking a lot of Boost and Ensure. She is overwhelmed
by the amount of supporters and is so grateful to everyone. The general
manager of Applebee's in Framingham, Frank Conway, did his own fund-raiser
for Donna and the trust fund on Thursday night April 12th. Mr. Conway
asked his employees if they would like to volunteer their services for
the night and agree to donate 100% of their tips to the fund. They were
so busy, the Managers, including Mr. Conway, were waiting on tables
themselves. This was advertised a few days before on Fox25 news at 10:00pm
and again the night it took place. We extend our sincere gratitude to
Frank and the staff at Framingham Applebee's for their remarkable act
of generosity.
There was also an article in the Metrowest Daily News on Wednesday
4/11. Unfortunately the article inaccurately reported that she had fingers
and toes removed. Those of you that have read her story know that is
not the case as of yet.
Her birthday party that was scheduled for April 28th has been postponed
for a month or so because she hopes to be able to attend -- therefore
we're hoping she'll be home by the end of May.
Week of 4/15/01-4/21/01
Donna continues with another week of occupational and physical therapy
at Fairlawn Rehabilitation Center. She has a therapy session in the
morning and again in the afternoon. It appears to be helping because
she is gaining back a lot of strength in her arms and legs. She is also
eating a lot better than when she first got to the rehabilitation center,
in part due to friends calling her before visits to ask what food she
would like them to bring. She had lasagna for Easter and has had KFC
for lunch once this week.
Her fingers have been a little sore this week but not enough for her
to request pain medication. She has been told that she will be moved
back to UMass Memorial on Friday to have the surgery performed on them.
She will be transferred early in the morning with surgery scheduled
for mid-morning. They are expecting the surgery to take only a couple
of hours. After surgery she will remain at UMass for about a week before
she again transfers back for a couple more weeks at the rehabilitation
center.
The surgery she is having is to remove the damaged portions of all
the fingers on both hands with the exception of her left thumb. The
majority of fingers are only losing very small portions at the top.
They will also be amputating approximately half of her right foot and
just the toes from her left foot. Also to be removed are a couple of
layers of skin from the bottoms of her feet. Obviously she will not
be able to put weight on her feet for sometime, at least until they
have begun the healing process. She is understandably nervous of the
upcoming surgery, but at the same time looking forward to putting this
all behind her and making one more step to returning home.
Week of 4/22/01-4/28/01
Yet another week of occupational and physical therapy to ensure a strong
body to eventually go home with. She had a trip to the hospital on Wednesday
to be evaluated for Friday's upcoming surgery. The evaluation went well
and she is in great health. They explained to her that they will be
removing portions of eight fingers and have decided to postpone the
surgery on her feet. They've noticed that the skin on her right foot
still shows signs of rejuvenation, therefore they don't want to perform
the surgery too soon if there's a chance to save more of it than originally
planned. They will evaluate her again in three weeks before performing
surgery on both feet. Since they will now be operating only on her hands
Friday, she will be in the hospital for only a few days.
On Friday, she was transported to UMass Memorial at 6:00 in the morning
and surgery was performed soon after her arrival. They operated on nine
fingers instead of eight and they removed a little more from some of
the fingers than originally planned, but otherwise the surgery went
extremely well. Expectedly, she is experiencing some minor soreness
from the operation.
While at UMass, a vacuum was inserted into the wound on the left side
of her chest to promote healing to the area. They are trying to close
up the wound, which they have kept open until now. This is a little
bit painful for her especially when she laughs, which she appears to
do with more frequency. Her hands will be kept completing bandaged until
Monday, when they will remove the bandages and transfer her back to
the rehabilitation center at Fairlawn.
Week of 4/29/01-5/5/01
Bandages or not, she's adapting remarkably well with her hands. On Monday
they removed the bandages covering her hands and individually wrapped
each finger. This affords her freedom to change the TV channels; answer
the phone, and most importantly, to feed herself. She lost some weight
this week due to the fact that she didn't eat very much, primarily because
she disliked being fed.
She was transferred back to Fairlawn Rehabilitation Center on Wednesday.
Unfortunately they were not able to hold her original room as requested,
but she is right next-door. At the Center she will be treated as a first
time patient again and is on precautions and will be requiring an assessment
before starting therapy. Also, they removed he drainage tube from her
chest, but the small one in her arm was left in.
Week of 5/6/01-5/12/01
She has begun therapy again, starting with in-bed sessions. Her fingers
were re-wrapped with a flesh colored, more flexible bandage. A doctor
visited with her at the beginning of the week to go over the possibility
of obtaining prosthetic fingers, which she is looking forward to. The
drain that was in her left arm had come out on it's own. They were going
to re-insert it but it was a bit bothersome to her and they decided
it wasn't really that necessary. She is healing remarkably well on the
left side that they have allowed her to dress in a housecoat. Her precautions
were lifted midweek and she was able to have her hair cut for the first
time.
She is being transferred back to UMass Memorial on Thursday morning
of next week for surgery on her feet. They will be amputating the toes
on her left foot and the top portion (a few inches below her toes) of
her right foot. They will also be removing a couple layers of skin from
the bottom of both her feet. She will remain in the hospital for a week
of recovery before being transferred back to Fairlawn Rehabilitation
Center.
Week of 5/13-5/19
She was transferred back to UMass Memorial as scheduled on Thursday
morning for surgery on her feet. Surgery went well and was certainly
worth the waiting period of three weeks. By waiting, they were able
to save the majority of her left foot, which only required the removal
of the big toe and small portions of the other toes. Unfortunately her
right foot was not as lucky. This foot required the removal of the top
portion and approximately an inch or two below the toes. They also removed
a couple layers of skin from the bottom of the right foot and attached
temporary skin grafts to those areas. She will require another skin
graft surgery in about four weeks.
Whereas they did not have to remove any layers from the bottom of her
left foot, she has been told that she could be up and around on crutches
as early as next Tuesday. It's been really exciting for her to actually
be able to stand on her own, so to speak, for the first time in three
months.
She was transferred back to Fairlawn Rehabilitation Center the next
day, Friday, and has been resting comfortably with minimal pain. She
will begin therapy once again as soon as she is assessed.
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