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| The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis! |
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My name is: Kerry R. Glavich Comments about the web site: I am a NF survivor! I will be filling out the survey soon, and am very interested in finding out all I can about NF. I'm from: Eureka, California Email: - kerry@wcinet.net How I found the page: - Did a NF search on Yahoo! My name is: MONICA ANDERSON Comments about the web site: I LOST MY DAD TO NNFF ON 10/29/99. OUR FAMILY WAS TOLD HE HAD NNFF ON 10/25/99 AND HE PASSED AWAY 4 DAYS LATER. AFTER READING ABOUT NNFF I REALIZED HE HAD SYMPTOMS FOR A FEW DAYS PRIOR TO GOIMG TO THE HOSPITAL ON 10/24/99, BUT NO ONE CAUGHT IT IN TIME. HE HAD BEEN TO THE HOSPITAL A FEW DAYS BEFORE COMPLAINING OF SOME SYMPTOMS. I WISH PEOPLE WERE MORE AWARE TO THIS NIGHTMARE BACTERIA. I'm from: SHREVEPORT, LA Email: - How I found the page: - LOOKING FOR IMFORMATION ON MY DAD'S KILLER My name is: William D'Angelo Comments about the web site: My Sister Susan Dougherty died on March 7, 1997 from NF after giving birth to a healthy baby on February 17, 1997 at Strong Memorial Hospital in Rochester, NY. It saddens me to find out about the death of the 20 year from syracuse. I read her story online last week. After reading her aunt Gloria's comments from Oct. 23, 1999 it brought all those feeling of Sue's loss back again. I have been a funeral director for over 15 years. Before Sue's death I have never knew anyone who had died from this disease. Since then I have talked with many people who have had love ones died from this. It is amazing how in almost all cases, the doctors do not recognize until it is to late. After a year of State investigations the Hospital and Doctor recieved only a slap on the wrist, even thought Strong was found neglient on 4 counts and Dr. Sanko had his licensed suspensed. The 4 counts against Strong where dropped because they admitted wrong doing and they had a plan of correction in place after Sue's death. Dr. Sanko had his suspension stayed because he admitted wrong doing and agreed to 400 hours community service. Also Strong Memorial settled the case out of Court with Sue's Husband and 3 children. Almost 3 years later her daughter Shannon is a wonderful child. She knows her mother is in heaven, but will not comprehend this loss for many years. I want again thank Donna at NNFF for her support of our family. She provided us with great information that helped our case. I'm from: Mount Morris, New York Email: - dangelo1@gateway.net How I found the page: - Donna My name is: William D'Angelo Comments about the web site: My Sister Susan Dougherty died on March 7, 1997 from NF after giving birth to a healthy baby on February 17, 1997 at Strong Memorial Hospital in Rochester, NY. It saddens me to find out about the death of the 20 year from syracuse. I read her story online last week. After reading her aunt Gloria's comments from Oct. 23, 1999 it brought all those feeling of Sue's loss back again. I have been a funeral director for over 15 years. Before Sue's death I have never knew anyone who had died from this disease. Since then I have talked with many people who have had love ones died from this. It is amazing how in almost all cases, the doctors do not recognize until it is to late. After a year of State investigations the Hospital and Doctor recieved only a slap on the wrist, even thought Strong was found neglient on 4 counts and Dr. Sanko had his licensed suspensed. The 4 counts against Strong where dropped because they admitted wrong doing and they had a plan of correction in place after Sue's death. Dr. Sanko had his suspension stayed because he admitted wrong doing and agreed to 400 hours community service. Also Strong Memorial settled the case out of Court with Sue's Husband and 3 children. Almost 3 years later her daughter Shannon is a wonderful child. She knows her mother is in heaven, but will not comprehend this loss for many years. I want again thank Donna at NNFF for her support of our family. She provided us with great information that helped our case. I'm from: Mount Morris, New York Email: - dangelo1@gateway.net How I found the page: - Donna My name is: Sandra Fay Collett Comments about the web site: One young man Dead and the other is recovering from the flesh eating disease. Joey Hoskins 19 years old was dead before the week was over after having his knee sutured at Marybreckinridge hosp in Hyden Kentucky.This happened about three months ago. At this time another boy is recovering. He is at home now but still has tubes to recieve antibiotics through. His name is Tyler Smith aproximatly 10 years old. He became very ill after a sprned ankle. His severe illness turned out to be the same bacteria that caused Joeys death. I am concerned with this. I know both of these people witch makes me worry that this deadly disease is concentrating here. Along with recent outbreakes of meningitis. Joey was transported by air to the university of Tennissee where he passed away. Tyler Smith was transported to The University of Kentucky he is still under their care and making good progress. Could this disease be concentrating here in this area along with autbreakes of meningitis. I'm from: Hyden Ky USA Email: - sandland@tds.net How I found the page: - Ask for information on flesheating disease or bacteria and used web crawler as a search engine My name is: Jim Haas Comments about the web site: I am a healthcare worker in a hospital laundry in Canada. I am very unfamiliar with this disease. Does anyone out there know if this didease can be killed through the normal washing of hospital laundry. With the amount of disease out there like this, I am wondering about my safety at the work site. In the main hospital bleach is used to terminal rooms and instruments, but, the laundry is cleaned normally. Is there a chance of being infected from soiled linen? If anyone out there can help me, my co-workers and I would be very grateful. I'm from: Victoria, B.C. Canada Email: - jamesrhaas@home How I found the page: - search engine My name is: c. carriere Comments about the web site: newphew has disease I'm from: Email: - How I found the page: - on internet My name is: Marsha Shelburn Comments about the web site: My dad passed away from this bacteria. I was glad to find this web site so I could try to understand. I'm from: Strafford ,Mo.USA Email: - Gameinsain@aol.com How I found the page: - My name is: Marsha Shelburn Comments about the web site: My dad passed away from this bacteria. I was glad to find this web site so I could try to understand. I'm from: Strafford ,Mo.USA Email: - Gameinsain@aol.com How I found the page: - My name is: Marsha Shelburn Comments about the web site: NNFF is something I have never herd of. My opinion on this is one of the most horrible diseas's. I have never seen or heard of. I wish people knew more about this, because I think if they did my dad would of had a chance. He had been to the hospital for other things and had all the singns of NNFF, but nobody caught on to them. He was only 51 years old. He had just retired from Truck dr. and was planning alot of things to do. He had 10 grandchildren, one was born 5 months ago. the next one was born 2 days before he died.He never got to see that one. He was a very special man and still is in all of our hearts. He is dearly missed by his wife,mother,7 chidren,and 10 grandchildren. He went through a lot of pain and suffering. I just wish some of it could of been prevented. IN LOVING MEMORY OF KENNITH E. KING I'm from: Strafford MO USA Email: - gameinsain@aol.com How I found the page: - My sister My name is: leah kornman Comments about the web site: i am a cna at a nursing home in reno nv, this last weekend i came in contact with nf. the patient, i will not give out her name, was a 37 year old woman, with nf, this disease scares me so much, i would like to learn more. we were all taking isolation precautions, is this over kill or should we have been doing this? ssadly this woman passed away while we were in with her, cleaning her up. her wounds were unlike anything i have ever seen before, her skin was just falling off literally, we would clean her peri area, and blood would just come from everywhere. this was the worst disease i have ever come in contact with. i would like to know a little more on this disease, it was really scary. I'm from: reno nv Email: - lck7773 How I found the page: - at my work, since we had a nf patient, someone printed out this web site and i went to it. My name is: Jessica Rowell Comments about the web site: I'm doing an extra credit project for my college biology class "Killer Germs" and I picked Necrotizing Fasciitis as my project. I think if more people knew about this disease then they would be more willing to give money. I didn't find out about it until I started to take this class and I wiah I had knew about it sooner. We talk so much about AIDS and other diseases that are much hard to get than this one is. I'm from: Columbus,Georgia Email: - rowell_jessica@colstate.edu How I found the page: - engine search My name is: Jessica Rowell Comments about the web site: I'm doing an extra credit project for my college biology class "Killer Germs" and I picked Necrotizing Fasciitis as my project. I think if more people knew about this disease then they would be more willing to give money. I didn't find out about it until I started to take this class and I wiah I had knew about it sooner. We talk so much about AIDS and other diseases that are much hard to get than this one is. I'm from: Columbus,Georgia Email: - rowell_jessica@colstate.edu How I found the page: - engine search My name is: Danette Comments about the web site: I'm saddend more each time I see someone else has had to go through what my family did when my mother died 09-26-99 of NF. I can't help but think that more could have been done. Other times I feel it was a blessing after reading horror stories of others who try to live and cope with this or have it come back to threaten them again. I know the pain of loosing someone so close will start to subside, but right now it is very hard to believe. May God place his healing hands on all who are touched by this. I still find it hard to relive the day the doctors said there was nothing else they could do. We got to say goodby and tell her how much we all loved her. I hope she could hear us. The whole family was there. She was so bad at that point, when the doctors removed the meds from her, it took only 7 minutes for her to die. Her kidneys had already shut down, she had a heart attack that morning, she had a small amount of lung capacity and was again in septic shock. It is extremely hard to even write about now, but she will always be my Butterfly. I'm from: Maryland Email: - virgo0823@aol.com How I found the page: - Seeking my mothers secondary cause of death. My name is: Danette Comments about the web site: In Loving Memory of Sandra M. Gentilucci I'm from: Email: - How I found the page: - My name is: Karen Markus Comments about the web site: Hi I had a very dear friend die from this disease.He lived up in Maple Falls, Washington. Now the little boy in kent has been on the news and this has brought back memories. I have access to internet at my work and thought I would check this sight. You are wonderful people . I'm from: Ravensdale ,Washington Email: - How I found the page: - Yahoo My name is: Jeana Van Dorp Comments about the web site: This place is like the only place on the web with a lot of info on this disease. I'm doing a project for school, and this place is a great source! I'm from: Grand Rapids, MI Email: - dingothing@yahoo.com How I found the page: - search, yahoo My name is: MONICA ANDERSON Comments about the web site: TODAY WOULD HAVE BEEN MY DAD'S 52ND BIRTHDAY BUT, OUR FAMILY LOST HIM TWO WEEKS AGO TODAY TO NF. HE IS MISSED AND LOVED VERY MUCH. MY DAD AND I ALWAYS CELEBRATED OUR BIRTHDAY'S TOGETHER BECAUSE THERE IS ONLY 2 DAYS APART. I WONDER IF I WILL ALWAYS BE SADDEN BY MY BIRTHDAY. HAPPY BIRTHDAY KENNETH ELGAR KING "DADDY" I'm from: SHREVEPORT, LA. USA Email: - MONICA@MONTGOMERY AGENCY,INC.COM How I found the page: - My name is: JAMIE EBROM Comments about the web site: I CONTRACTED THE DISEASE IN MAY OF THIS YEAR. IT STARTED IN MY RIGHT ABDOMEN AND SPREAD INTO MY INNER RIGHT THIGH. I SPENT THREE WEEKS IN THE HOSPITAL, TWO MONTHS OFF WORK AND HAVE GONE THRU 5 SURGERIES. THE ORIGINAL MISDIAGNOSIS WAS 'SEVERE LYMPHONIDES' AS THE PAIN BEGAN IN THE LYMPHNODE AREA IN MY RIGHT GROIN. I HAVE READ MANY OF THE PUBLISHED STORIES ON THIS SITE AND AND AM STILL AMAZED AT THE FEROCIOUSNESS OF THIS BACTERIA. I STILL HAVE OPEN WOUNDS FROM WHERE THE BACTERIA DESTROYED MY SKIN. I AM STILL ON ANTIBIOTICS AND MEDICINE FOR PAIN, BUT AM DETERMINED TO WIN. I HATE WHAT HAPPENED, I DON'T UNDERSTAND IT. BUT WILL DO ANYTHING TO SPREAD THE WORD AND EDUCATE PEOPLE TO BE AWARE THAT IT IS OUT THERE. I'm from: HOUSTON, TEXAS Email: - EBROMJAMIE@AOL.COM How I found the page: - FRIENDS FROM WORK THAT WANTED TO HELP My name is: jamie ebrom Comments about the web site: Melissa, I lost your e:mail address so if you read this please try again. I would like to know more about you and your experiences. Thanks, Jamie I'm from: Houston, Texas USA Email: - ebromjamie@aol.com How I found the page: - My name is: Michelle Smith Comments about the web site: My partner had necrotising fasciitus in August. It resulted in him having his left leg amputated and he also fought for his life for the following 48 hours. We were even told by the doctors that they had never seen anyone survive beyond that point. I would find it really helpful to talk to other people who have gone through the same ordeal. I'm from: Gosport, Hampshire, England Email: - michelle@gosport5.freeserve.co.uk How I found the page: - I was looking for info on Necrotising Fasciitus My name is: Robin Renee Wilson Comments about the web site: Your website was truely informative. Someone in my hometown passed away 11 weeks ago with this disease. Family members were traumatized to say the least. I intend to pass along this info as well as your address. The boy was only 19 years old, healthy, and contacted this as the result of stitches following a motorcycle accident. After meeting with his parents through a mutual friend, my career in the health care field drove my attention to your site. The teenager was seen at 4 different hospitals before diagnoses. Thanks. I'm from: London, Kentucky. U.S.A. Email: - scobob How I found the page: - Yahoo searcher My name is: Seth Comments about the web site: I survived NF almost 10 years ago (1990) when i was 13 years old. It left me horribly scarred but other wise intact. For that i know now that im lucky. I wouldn't wish this on my worst enemy. And although ever since I have had a zest for life, the scars still run deep. reading about others like me helps, thank you for what you are doing. I'm from: IL Email: - How I found the page: - Web Search Nov 17, 1999 - 20:16 My name is: Anita Alvarez Comments about the web site: This webpage has been very helpful in educating me about this "flesh-eating bacteria". I was seeking information about it because one of my aunt's has this disease and is very ill at the moment. I'm from: McAllen, Tx. ---U.S. Email: - How I found the page: - Looking for the best resource available My name is: Comments about the web site: Thanks a bunch for having a web site were people can find information on the diease Necrotizing Fascitis. If you have any web sites that have more information please e mail it to Tigger_13 @goplay.com. Thank you!!! I'm from: Canada Email: - Tigger_13 @ goplay.com How I found the page: - looking under the topic Necrotizing fascitis also known as the flesh eating diease. My name is: Julie Spears Comments about the web site: I am now trying to recover from my third bout with an invasive group A infection. The first time I had it was in 1993, and I went into toxic shock. I had been diagnosed at a walk-in clinic with a sprained ankle, although I had no recollection of injuring myself. I had a red, swollen area on my ankle that was emitting a lot of heat, even though I did was not running temperature. I was not able to walk, except with crutches or a walker. I had no wounds on my foot or anywhere else, not even a bruise. I became alarmed when two days later, it spread to the other foot, also. I went to the hospital emergency room, where it was diagnoses as cellulitis, although the doctors were puzzled because there were no wounds, and both feet had become involved. To make a long story shorter, I went through two months of this, no being able to walk most, but not all, of the time, going from doctor to doctor, antibiotic to antibiotic, blood pressure dipping down as low as 70/40 (toxic shock) and finally getting better. Until this summer, that is. I had to have a root canal and oral surgery. Three days after I completed my antibiotics, the cellulitis appeared on one foot and I was barely able to walk. I went to the emergency room right away and was lucky enough to get a doctor that is knowledgeable about invasive GAS. He gave me a huge dose of penicillin G and it worked! I got rid of it by the next day and could walk just fine. When this is systemic, YOU DO NOT HAVE TO HAVE AN INJURY IN THE SAME AREA THAT BECOME INFECTED. Invasive GAS is just that--it gets in your bloodstream. Extremities become infected because they are outside the peripheral immune system manufacturing which takes place in your bone marrow. Week before last, the dentist removed the temporary filling from my root canal. Last Friday night, after waiting in the emergency room for nine hours and was not so lucky this time. The ER doctor insisted that this was on the surface of my skin, even though there is no wound. He did not give me the penicillin I needed, offering instead a prescription of Naprosyn (which you can get over-the-counter as Advil, etc.) I was able to see my regular doctor on Monday and am taking IV strength oral clindamycin. Thanks for letting me vent. The biggest problem is not just the public's lack of knowledge. It is the lack of knowledge of physicians and hospital staff, when they do not know that PROMPT MEDICATION makes the difference between life and death. I'm from: Dallas, Texas, USA Email: - jaspears@swbell.net How I found the page: - researching group A streptoccal infections via the Internet My name is: Karen Johnson Comments about the web site: I survived the disease. I'm still recovering, but am slowing getting my life back. I'm from: Minneapolis MN Email: - K.Johnson@prodigy.net How I found the page: - My name is: Jerry Vogel Comments about the web site: I was looking for info on this disease because of a problem my girlfriend is having with peeling skin on her hands. Thankfully her syptoms don't those for this disease.I believe her condition stems from having her hands in alcohol where she works. (Medtronics in GR) I was somewhat frustrated at the trouble I had trouble finding info on this disease, thinking "skin disease" would work in the search. Persistance paid off going thru several links. I would hope someone with more realistic symtoms could find it easier."Flesh Eating Bacteria" were the key words to finding the site. Being from the Grand Rapids area recall seeing your story in the Press. If I hadn't just went thru a debilitating divorce (financially and mentally) I would have loved to help out. Good Luck. I'm from: Rockford, Mi. Email: - jvogel@triton.net How I found the page: - I don't know how to surf, so I must have been browsing. My name is: Jerry Vogel Comments about the web site: Corrections to previous message:Insert MATCH in "don't MATCH those" and delete "TROUBLE" in "I had TROUBLE finding". I'm from: Email: - How I found the page: - My name is: H. Lamar Glover. Sr/ Comments about the web site: I am a patient with this condition. We found out about this web site while vacationing in Holland, MI. There was a man there who had the same condition in 1994, and has recovered. He helped us move my wheel chair through the drifting sand and the Holland Llight House. It was a big encourgement to me, and I am still waiting for skin grafts and more healing. I'm from: Middlebury, IN 46540 Email: - hlglover@gte.net How I found the page: - Sese comments My name is: StŽphanie Oliver Comments about the web site: your web site was really good. i`m doing a project on necrotizing and i found a lot of the info i needed. I'm from: ottawa , canada Email: - How I found the page: - i searched on yahoo. My name is: Dori Pierce Comments about the web site: My drug counslor asked me to look up this disease. It seem that people are coming down with it by shooting herion in the muscles not in the vain.If you can give me any information about drug addicts getting this I'd appreciate it.Do drug addicts get it more offten than straight people? I'm from: Citrus Heights,Ca.U.S.A. Email: - lilbitmo@c-zone.net How I found the page: - I went to altavista.com and typed the name of the disease. My name is: Sheila Cristina Silva Barbosa Comments about the web site: Sou portadora de NF2 e gostaria de receber informa›es a respeito. I'm from: Belo Horizonte, Minas Gerais, Brasil Email: - sheila.barbosa@uol.com.br How I found the page: - Dr. Sergio Danilo Pena My name is: Sophie Comments about the web site: Most of the time I can forget about the awful time that I have had as a survivor of NF. But every now and then I have to go through the process of getting to grips with what happened to me. Your web site has been helpful in this respect. It has been part of the healing process. My thanks to all. I am so busy at present that I am not voluteering (!) but we are so starved of any information/awareness campaign here in the UK. Any thoughts? I'm from: London, England Email: - How I found the page: - browsing a couple of years ago. My name is: debra neilson Comments about the web site: i have recently nursed a patient with this horrific condition never in all my nursing have i ever witnessed anything like it and hope never to again. i am very interested in this subject so i can pass information on to my collegues. thankyou for your consice information. I'm from: newcastle new south wales australia Email: - How I found the page: - My name is: Vicki Comments about the web site: Sophie - message on guest book 26th November, further to your message last Friday, could you try and contact me on the following e-mail address, a few thoughts I would like to discuss with you if you have the time. Thanks. I'm from: Reading, Berkshire, England Email: - rodnic@compuserve.com How I found the page: - regular visitor My name is: sara edwards Comments about the web site: I'm from: Email: - How I found the page: - My name is: Jill Selman Comments about the web site: I started developing severe pain in my left groin area in late May of 1999. I went to an urgicenter and was told that I had "an infection" and was given a prescription for antibiotics. I left work on June 2, 1999 in severe pain where I could hardly stand up. Two days later, a friend of mine who is a physician assistant, came to see me. I was confused, disoriented and in a lot of pain. She called for an ambulance. Upon arrival at the hospital, my vital statistics were so unstable that the surgical call was to hold off on the tissue removal. The next morning began the first of 10 surgeries to remove the necrotic tissue. I spent 2 weeks in the ICU and my familiy was told that my prospects were grim. I am only 40 years old, but I was fighting for my life. I had an 11th surgery whereby the skin from my legs were used to do grafting. This surgery was largely ineffective. I was in the hospital for 4 months and have had to learn to walk all over again because of the inactivity of my muscles. I have endured endless dressing changes, megadoses of morphine, was septic and have had a multitude of secondary conditions. I am doing well now, but I know that emotionally, it will take a long time to heal. Physically, the wound is closing, although there are still some open areas. I have opted to wait it out for the wound to close. My family and friends have been wonderful and I had the best surgeon possible. He was very aggressive in his treatment and intensely cared for me throughout my hospital stay and still does. Anyone who wants to e-mail me to discuss their experiences or to ask questions is welcome to do so. I'm from: Staten Island, NY, USA Email: - heidiho@dellnet.com How I found the page: - search engine My name is: Merrin Brown Comments about the web site: My mother , Faye Elaine Busansky 16/12/46 died from NF on 02/09/96 I'm from: Johannesburg, South Africa Email: - merrinb@yebo.co.za How I found the page: - on the internet My name is: Criz Comments about the web site: I think that this is a good site. It tells you a lot about the disease. The site also raised my awareness. I'm from: Mississauga, Ontario Canada Email: - How I found the page: - Very interesting My name is: Megan Deveau Comments about the web site: this page has really helped me learn about the disease. I'm a student from Nova Scotia and i was doing research and your page helped alot thank you lots of thaks Megan Deveau I'm from: Halifax, NS Canada Email: - jwakefeild@hotmail.com How I found the page: - through a canadian search engine My name is: E Morris Comments about the web site: My daughter is going through this nightmare bacteria at the moment. She is only 5 1/2 years old. Her infection started from chewing her thumbnail. There was no sign of broken skin or infection at all one night and the next morning her thumb looked horribly infected with multiple puddles of pus under the skin. She had a surgery on her thumb after four days and two different antibiotics (which did nothing to slow it down) and we are hoping that, coupled with heavy duty antibiotics, it will get rid of this terrible thing.It is certainly not like any infection I've ever seen. I'm from: Brooklyn, NY Email: - Composerem@aol.com How I found the page: - Browsing the internet. My name is: Denise Wilson Comments about the web site: 12/7/99 A survivor I'm from: Cotati ,California U.S.A. Email: - ROCKS 38@aol.com How I found the page: - research for my recovery of NF on 3/29/99 My name is: E Morris Comments about the web site: Update My daughter seems to have beaten this thing. The antibiotics and surgery seemed to have done their job and I hope we never cross paths with this thing again. I'm from: Brooklyn, NY Email: - How I found the page: - My name is: Andreah Haines Comments about the web site: A dear friend of mine, Brook D. Warpenburg AKA "Shnook" passed away from this disease in March '99. Thank you for the information on this page, and god bless Brooks family. We will all miss Brook. keep smiling Shnook! I'm from: Spokane, Wa Email: - andydandy@arias.net How I found the page: - from the family of Brook My name is: Jackie Roemmele, cofounder NNFF Comments about the web site: Hello and Happy Holidays everyone! As you can gather from reading about the high rate of misinformation and misdiagnosis of NF leading to death or severe disfigurement, the need for mainstream awareness of this deadly disease is urgently needed. I am currently working with a journalist from a primetime, highly respected news program for just this reason. What we would like to do is chronicle a survivor's experience as early as possible in the disease, through the treatment process, recovery, and healing. If you or a loved one would be interested in assisting us in this important informational program, please email me at jroemmele@aol.com. Again, our best chance at saving lives is through public awareness -- this is a wonderful opportunity. Thank you very much! Happy Holidays, Jackie I'm from: Niantic, CT Email: - jroemmele@aol.com How I found the page: - My name is: BRIGITTE ANDERSON Comments about the web site: I AM THE SURVIVING SPOUSE OF EDDY A ANDERSON, WENT TO BE WITH THE LORD ON NOV. 24, 1999. VICTIM OF THIS DISEASE THAT NO ONE IN THIS FAMILY HAD NEVER HEARD OF BEFORE. WOULD LIKE TO BE ABLE TO HELP OTHER PEOPLE AND MEDICAL PROFESSION TO ARREST THIS BACTERIA CAUSING DISEASE AT AN EARLY STAGE BEFORE IT CAN BECOME FATAL. I'm from: TACOMA, WASHINGTON Email: - EA37BA40 How I found the page: - AOL NETWORK My name is: Vanessa Wright Comments about the web site: I survived NF a year ago, I`m slowly recovering. I would like to see more UK sites or speak to survivors or reletives. I'm from: Watford, Hertfordshire. England Email: - sydney3@tinyonline.com How I found the page: - searching for info on NF My name is: Vinny Comments about the web site: I found this page most infomative. My mom has this illness and has almost taken her life. I would love to hear from anyone who can make this easier on her since she has a serious diabetic problem. I'm from: SOUTH AFRICA Email: - vinnyjc@iafrica.com How I found the page: - Surfing the net My name is: MONICA ANDERSON Comments about the web site: I WOULD LIKE TO WISH EVERYONE A MERRY CHRISTMAS. I KNOW THIS IS A HARD TIME OF YEAR FOR THOSE OF US WHO HAS LOST LOVED ONES TO NF. I WISH ALL HAS BEATEN THE DISEASE A VERY MERRY CHRISTMAS AND MAY GOD BLESS YOU AND YOUR FAMILY. THIS WILL BE MY FIRST CHRISTMAS WITHOUT MY DAD AND IT HAS BEEN VERY HARD AND CHRISTMAS DAY WILL BE EVEN HARDER. AGAIN, I WISH EVERYONE A VERY MERRY CHRISTMAS AND A HAPPY NEW YEAR. I'm from: SHREVEPORT, LA Email: - MONICA@MONTGOMERY AGENCYINC.COM How I found the page: - My name is: MONICA ANDERSON Comments about the web site: I WOULD LIKE TO WISH EVERYONE A MERRY CHRISTMAS. I KNOW THIS IS A HARD TIME OF YEAR FOR THOSE OF US WHO HAS LOST LOVED ONES TO NF. I WISH ALL HAS BEATEN THE DISEASE A VERY MERRY CHRISTMAS AND MAY GOD BLESS YOU AND YOUR FAMILY. THIS WILL BE MY FIRST CHRISTMAS WITHOUT MY DAD AND IT HAS BEEN VERY HARD AND CHRISTMAS DAY WILL BE EVEN HARDER. AGAIN, I WISH EVERYONE A VERY MERRY CHRISTMAS AND A HAPPY NEW YEAR. I'm from: SHREVEPORT, LA Email: - MONICA@MONTGOMERY AGENCYINC.COM How I found the page: - My name is: Brian Vicknair Comments about the web site: I'm reading this page since my girlfriend's brother was diagnosed with Group A Strep with NF. This has been a wonderful source of information and it was inspirational to read the personal survivor stories. I hope we can all get better educated on this disease and one day eliminate it. I'm from: Austin, Texas USA Email: - How I found the page: - Searching for Strep A with necrotizing fasciitis My name is: Katherine Lambert Comments about the web site: My sister has been in the ICU at a hospital in NYC for almost three months, recovering from a severe case of NF which started with an intestinal leak after abdominal surgery. She lost part of her intestine, abdominal muscle, tissue, fat and skin. Her wound, which is still open, is about two by two and a half feet and several inches deep. She faces another month or two in ICU before her wound can be closed, followed by several more months in the hospital and in rehab. If anyone has had a similar experience I'd love to hear from you. My sister needs all the encouragement she can get. When she was first diagnosed, this webpage provided a wealth of information which was very helpful to us. I'm from: Hartford, CT, USA Email: - klambert@goodwin.com How I found the page: - Searched under Necrotizing Fasciitis using Yahoo My name is: Scott March Comments about the web site: I am a survivor of necrotizing fasciitis. I was struck with the disease in May,1998. I had 3 operations on my left arm.Thank God,the doctors caught it in time.My arm was saved,and everything is going well. I'm from: Delmont,Pa.15626---U.S.A. Email: - pringle106@alltel.net How I found the page: - looked around until I found it. My name is: Suzanne Pfuhl Comments about the web site: I work at a funeral home in Arlington and we had a body come in today with this condition. I want to thank you for your information. I was rather concerned after finding out the cause of death. Now I know what to look for if I did happen to have adequate contact with him to get the disease. And most importantly, I will know to get immediately to the hospital if I begin to show signs of any of these symptoms. I'll be calling my other co-workers who were involved in his case right away. Thanks again. I'm from: Alexandria, Virginia Email: - xieonia@hotmail.com How I found the page: - search engine |
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Copyright © 1997-2003 National Necrotizing Fasciitis
Foundation (NNFF)
All Rights Reserved. March 16, 2003 |