The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

May 3, 1999 - 04:54

My name is: Jason and Charlotte Maude

Comments about the web site: Our 31/2 year old daughter contracted NF and suffered toxic shock 5 days ago.Your site has been very interesting but also frightening to realise how close she came to death. She is starting to recover now but will still be in intensive care for several more days.We live in London,England and will be interested to know how we can help develop awareness of this condition and crucially education about its early diagnosis in the UK.

I'm from: London,England

Email: - jmaude@ibm.net

How I found the page: - searching

May 3, 1999 - 17:39

My name is: Christina Pritchard

Comments about the web site: My sister is a survivor of NF. She is an amputee. I will encourage encourage her to visit your website and respond to your Ssurvey.

I'm from: San Diego, CA

Email: - cpritchgo@home.com

How I found the page: - search under flesh eating disease

May 3, 1999 - 20:58

My name is: qdaoneandonly

Comments about the web site: i used this site for a science project sorry to the victims

I'm from: canada

Email: -

How I found the page: - search

May 5, 1999 - 12:49

My name is: Judy

Comments about the web site: My mother recently passed away after being in the hospital for 6 weeks with this infection. She had it in the back of her neck and endured 13 surgeries/ debridements. My mother was a vibrant woman who hadn't been sick a day of her life. For approx. 4 weeks of her hospital stay she was "knocked out" and on a ventilator. It was VERY hard to see my mother like this especially since there was very little warning that anything was wrong with her. My mother had just been at work 2 days before going to the emergency room and was "apparently fine" at that time. Those 6 weeks had been a roller coaster ride from hell. Actually, my mother was "beating" this but ended up developing a blood clot near her heart and passed away when part of the clot broke off. I would never wish this gruesome infection on my worse enemy.

I'm from: Cleveland, OH

Email: - juderz@juno.com

How I found the page: - My sister was doing research on the Net when my mother was first diagnosed with this infection
 
 

May 5, 1999 - 15:49

My name is: Susan Loomis

Comments about the web site: I had breast reduction done last June 1998, contacted the bacteria 1 wk after surgery, within one and 1/2 days it ate the underneath of both breasts. Within 6 wks I had 20 Doctor appts. 9 hyperbaric treatments 2 a day, saw 5 Doctors and had skin graft done on both breasts (under part). A real ordeal. At the time of the infection started, my house reaked of dead skin terrible odor.Wonder if anything legal can be done???

I'm from: Bryans Road MD 20616

Email: - larryloomis@email.msn.com

How I found the page: - searching

May 5, 1999 - 19:01

My name is: Angel Vicsek

Comments about the web site: Thank you so much for your very informative web page. I'm a medical student at Davenport college and this page helped with a paper I'm writing.

I'm from: South Bend IN , US

Email: -

How I found the page: -

May 5, 1999 - 19:02

My name is: Angel Vicsek

Comments about the web site: Thank you so much for your very informative web page. I'm a medical student at Davenport college and this page helped with a paper I'm writing.

I'm from: South Bend IN , US

Email: -

How I found the page: - center for disease control

May 5, 1999 - 20:42

My name is: sarah

Comments about the web site: this is sad , my uncle recently died of this at first he only thought of it as a mild cold and a zipper cut that wouldnet heal now i wish i would have known what the symtoms were so that maybe he could have gotten help sooner

I'm from: new york

Email: -

How I found the page: - surfed on it

May 7, 1999 - 12:32

My name is: Heather Barr

Comments about the web site: I found it a very informative site that has helped me alot with the research projeyct that i am currently working on. Keep up the good work on letting us the public know what this horrible disease does and how it can be prevented.

I'm from: Turtleford, Saskatchewan, Canada

Email: - Lunamesa1@excite.com

How I found the page: - Looking through the net for information

May 8, 1999 - 18:56

My name is: Jam Jam Carter

Comments about the web site: This page was very informative because i am doing a report on it. Thank you for putting so much info onto your page so thanx!

I'm from: Oregon Portland

Email: - no thanx

How I found the page: - i went to webcrawler

May 8, 1999 - 23:38

My name is: Brian G.

Comments about the web site: I heard about this disease on Guinness on TV so i decided to do a report on it for school. this is more informative, helpful site I found.

I'm from:

Email: -

How I found the page: - I typed necrotizing fasciitis on Yahoo!

May 10, 1999 - 14:39

My name is: Laura Byrd -- byrd.77@osu.edu

Comments about the web site: I am doing a recitation in Biology about necrotizing fasciitis for college. I actually saw something about this on "Guiness World Records" as the deadliest bacteria. The information you have provided me is highly informative. Thank You

I'm from: Mansfield, Ohio, USA

Email: - byrd.77@osu.edu

How I found the page: - Netscape Search for Biology

May 10, 1999 - 16:41

My name is: Michelle Greenway

Comments about the web site: This site helped me a lot on my science project I learned alot about it. It is very scary what this diease does to people.

I'm from: Ottawa, Ont. Canada

Email: - lesmew@hotmail.com

How I found the page: - yahoo.ca

May 10, 1999 - 19:58

My name is: dawn scott

Comments about the web site: yours has been the most helpful to myself and my sister since the passing of our mother last year 1998), for giving us a few answeres and a little sanity back we thank you.

I'm from: Birmingham

Email: - dawnbigbird@scot1.powernet.co.uk

How I found the page: - by searching for information on the net / sheer luck

May 11, 1999 - 13:08

My name is:

Comments about the web site: this is a cool site

I'm from:

Email: -

How I found the page: -

May 11, 1999 - 22:29

My name is: Tina

Comments about the web site: Don't know what to say. I am a Critical Care RN who has dealt with this just recently in our dept. A young gentleman died from it and has touch me in a way nothing has touched me before. I commend you for your strength in surviving.

I'm from: WI

Email: - Code55babe@aol.com

How I found the page: - from my sister

May 12, 1999 - 13:38

My name is: Rich

Comments about the web site: We can help youfind a job!

I'm from: Millersville University

Email: -

How I found the page: - search

May 15, 1999 - 21:10

My name is: Jessica Neine

Comments about the web site: I'm 13 and I watched a show on Necrotizing Fasciitis, and I wanted to find out as much as possible about it and what I can do to help the research.

I'm from: Coquitlam, BC, Canada

Email: -

How I found the page: - Yahoo! Search

May 15, 1999 - 23:29

My name is: Mary Bishop

Comments about the web site: My husband, Frank Bishop, died from NF on May 3, 1999. He was very healthy. This is the most horrible sickness I have ever seen or heard tell of.

I'm from: Charlotte, N.C., USA

Email: - fbishop@Perigee.net

How I found the page: - looking for information on NF

May 16, 1999 - 02:19

My name is: April Johnston

Comments about the web site: I lost my cousin, Brook, to this horrible bacteria on March 13, 1999. It's too bad that the public AND the medical community haven't been better informed as to what the symptoms of this disease are. Never in a million years would have my Aunt thought that a "sprained ankle" or "strep throat" would have taken her daughter's life! Brook was sent home from the hospital with a shot of antibiotics.... and passed away three days later. At least she died in her mother's arms - knowing how very much she was loved. We all miss her terribly. God must've needed her more than we did.... Thank you for creating this very informative web site! I will definitely be passing this on. God Bless all of those who have been through, or lost a loved one to this awful bacteria!

I'm from: San Antonio, TX

Email: - aprilj88@earthlink.net

How I found the page: - My Aunt

May 16, 1999 - 18:39

My name is: Bob Stahl

Comments about the web site: I am a survivior of NF and it is wonderful to find your web site. I had nf in Jan.1996 and am very lucky to have survivied. Some day I would like to write my story and have it included in the Surviviors section.

I'm from: Santa Cruz, Ca. 95062

Email: - art@sasquatch.com

How I found the page: - search

May 16, 1999 - 22:27

My name is: Kathi Dempsey

Comments about the web site: I recently went thrugh a bout with N. I was 40 years old. I was told that I had less than a 30% chance of suvival. My story began in December of 1997. I still cannot believe that the human body can endure such pain. It started with flu like symptons. Within a matter of hours I was so sick that I did not feel that I even had the energy to go to the doctor. Finally my husband literally carried me to an emergency room at which I was told that I had an upper respitory infection and sent home. Within 10 hours I was so extremely mentally confused and in so much pain it was almost unbearable. My husband took me to our family doctor, even though I complained that I was too sick to go. I was admitted to the hospital where eventually my lungs collapsed, I had exploratory sugery, tubes were put into my lungs for drainage, they inserted a tube into the sack surrounding my heat to relieve the pressure on my heart because my heart rate was 174 beats a minute (and had been for 4 days) and I had something called (ARDS) Adult Respitory Distress Syndrome which the odds on suvival from that are less than 30%. But to my numerous doctors amazement I pulled thru (this I believe is due to God and the love of my family), I still have numerous complications and the damage to my heart and lungs will never be completely normal. I now feel grateful just to wake up every morning and see the sunshine. GOD IT'S GREAT TO BE ALIVE!!!!!

I'm from: Tampa, Florida USA

Email: - PDem101018@aol.com

How I found the page: - Up until now , mentally incapable of reading about it but I'm glad that I did

May 18, 1999 - 17:00

My name is: Mandy Hedder

Comments about the web site: anybody that survived this stuff is pertty cool!

I'm from: America

Email: - m_vedder@hlms.bandon.k12.or.us

How I found the page: - yahoo

May 21, 1999 - 10:49

My name is: Rev. James Barry cp chaplain, Lutheran Gen Hosp

Comments about the web site: thanks for your service, when we educate we always help prevent disease..... God bless your efforts and may your clients and families be blessed. you are in my prayers....rev jim barry cp jbarry @cp-vms.org

I'm from: usa

Email: - jbarry@cp-vms.org

How I found the page: -

May 23, 1999 - 15:24

My name is: Deborah Eastes

Comments about the web site: In 1990 I developed NF. We were living in the town of Cody, WY at that time, and the doctors there knew of the disease, but had never treated it. I presented with a fever of 104+ degrees, but no other symptoms at that time other than severe pain in my left leg along with swelling. 48 hours later, little white dots formed on my foot, the leg swelled to twice it's normal size, and the pain became intense. The course of treatment is complicated. One of the doctors in the practice of my main doctor wanted him to remove my leg, but my doctor really worked very hard to find just a little bit of blood supply to the limb, it was very touch and go for several weeks. Of course, we are very thankful for the work he did. After six surgeries, a month in the hospital and a $42,000.00 bill I went home for almost six months of PT and recuperation. What I am interested in is the effects of this disease on the mentation of those affected. Afterward, I feel that I was affected mentally for almost a year. Also, I still suffer from intense pain in my left leg, along with swelling. Is any work being done in this area? One more question, are there any statistics on the probability of a repeat of this disease in those who have had it before? Are we more susceptible? I've been told yes and no, which is hardly consolation! Sorry for the length of this note,I am looking forward to reading your book.

I'm from: now residing in Medford, OR, originally from CA, have lived all over the world

Email: - Deborah605@aol.com

How I found the page: - looked up flesh eating strep on GoTo.com

May 23, 1999 - 20:30

My name is: cc and michelle

Comments about the web site: This is for our school project. It was very informational we appreciate the site. All the love to the victims of this horrible condition. God bless you.

I'm from: Nevada, Usa

Email: - no

How I found the page: - just plain browsin

May 24, 1999 - 05:22

My name is: Sheri Hardin

Comments about the web site: I just stopped in to see how everyone was doing. Lots of new entries since the last time that I was in here. You girls are doing a fabulous job on this website. I noticed lots of new listings in the table of content and I can't wait to get into the chat room and the book sounds like it will be very helpful to all of us who have experienced NF (physically and especially mentally). I'll check in again real soon. God bless to all.

I'm from: Klamath Fall, Oregon

Email: - jrch@cvc.net

How I found the page: - NF SURVIVOR!!!!!!!!!!!!!!!!

May 25, 1999 - 03:24

My name is: M C

Comments about the web site: I had NF. Wouldn't wish it on my worst enemy.

I'm from: SD, CA

Email: -

How I found the page: - Looked for it

May 28, 1999 - 23:20

My name is: L Mulligan

Comments about the web site: Thank you for sharing your story with so many people, it helps everyone including nurses keep perspective on people with disabilities.

I'm from: Australia

Email: -

How I found the page: -