The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

My name is: stacy

Comments about the web site: It's good to help people become informed about this type of strep. Keep up the good work.

I'm from: frazier park ca usa

Email: -

How I found the page: - art bell

My name is: Rebecca Sandall

Comments about the web site: I am doing a science fair project on Necrotizing Facsciitis. If there is anything else out there I would like to know. It would be much apprecitated. Thank You!

I'm from: Peoria, IL

Email: -

How I found the page: - researching a topic

My name is: john w snider torkit@mindsring.com

Comments about the web site: Symptoms sound familiar. I'm still alive. Light trauma on the 20th of February. Tremendous onslought on March 4th. Symptoms identical to those mentioned here. Treated at Dekalb Medical Center in Decatur Georgia.

I'm from: Lilburn, GA USA

Email: - torkit@mindspring.com

How I found the page: - Yahoo Search

My name is: Benny b baby

Comments about the web site: cool picture dudes! keep up the good work I found your website very interesting

I'm from: chandler,AZ

Email: - -

How I found the page: - Art BEll

My name is: Carol A. Rolfe

Comments about the web site: I am also a survivor of this "horrible" infection. A mother of 3 children, a wife, a daughter and a friend to many people. I woke up one day, three days after my 39th birthday, November 15th, 1997 with my right arm in excrusiating pain. Although I did nothing we thought maybe carrying my almost 3 yr. old son, I may have "pulled" a muscle. I called my clinic and they instructed me to go to the emergency room at our hospital. I did so. The doctor told me I pulled a muscle, gave me a sling and pain pills and sent me on my way. Never asking further questions or doing any blood work, etc. This visit by the way was at 6:00 a.m. in the morning. The following day my arm did not get any better and the pain medicine was not touching the pain. I called my clinic again and this time they instructed me to go into the Urgent Care center. This was at about 6:00 p.m. I arrived there and they had a hard time getting a blood pressure on me. I was dehydrated and needed two bags on fluid. They also could not find a vein to administer this. They finally got a blood pressure and it wa 60/40. Not good. They did some blood work (which the hospital emergency room should have done the day before) and my sedrate was 59 or so, when 20-25 is normal. This meant I had an infection. My mother was with me and said that I also had like a hive on the under portion of my right arm. They gave me the fluids and also an antibiotic and told my mother that if I was not better within 72 hours call my physician. Leaving the Urgent Care center was the last thing I remember until I woke up after being in an induced como for 3 weeks. On Tuesday, November 18, I went to a doctor at my clinic and they immediately admitted me to the hospital. Six hours later I was moved to intensive care. I was there until November 21, 1997 and then was transferred to the U.W. hospital here in Madison which teaching hospital. I was transferred because the first hospital did not know what I had, but Dr. Dennis Maki knew exactly what I had. Along with the assistance of Dr. Richard Helgerson and the burn unit at the U.W. I was in a 6-1/2 hr. surgery to remove the skin and fat that was affected. It goes from my right thigh to my abdomen, a portion of my back and under my right arm. They had to remove muscles and lymph nodes. They saved my life. I was brought out of the como around 3 weeks after and was told what had happened. During that time I also had a skin graft surgery. When I awoke I still needed two additional surgeries. I was finally released on December 23, 1997 and was able to spend Christmas with my children and family. Thank you God and all the prayers. It is now March 11th, 1997 and am doing extremely well. My arm is still somewhat swollen but is working. I have many appointments for P.T. and O.T. But I am here to say that I survived this horrible infection and hope that between myself, my family and the staff at the U.W. Hospital in Madison, WI. that we can all help someone learn and survive this in the future. My heart and prayers go out to all the families of the survivors and the victums that were taken by this awful infection.

I'm from: Madison, WI USA

Email: -

How I found the page: - From Family members along with searching the web.

My name is: Chris

Comments about the web site: Do something on strep throat

I'm from: Naples, FL

Email: -

How I found the page: - Research

My name is: AMANDA B HOWARD

Comments about the web site: MY MOTHER DIED OF NECRITIZING FACITITIS ON DEC 1, 1997 AT RIVERLAND MEDICAL CENTER IN FERRIDAY, LA IT STARTED ON THE RIGHT SIDE OF HER FACE WHICH WAS REMOVED INCLUDING NECK, SHOULDER AND CHEST

I'm from: JENA, LOUISIANA USA

Email: - ACEHOWARD@CENTURYINTER.NET

How I found the page: -

My name is: Courtney Clinton

Comments about the web site:

I'm from: Houston, tx

Email: - c0c0747@labs.tamu.edu

How I found the page: - Texas A&M

My name is: deion sanders

Comments about the web site: i really like your web site because it is very interesting and educational. i hope you enjoy watching me play football next season.thankyou!

I'm from: dallas,texas

Email: - ww.deion.com

How I found the page: - i was just surfing.

My name is:

Comments about the web site: This page was awsome!!! Keep up the great work!!!

I'm from: Cambridge, ONT, Canada

Email: - Sorry

How I found the page: - School Research Project

My name is: Anonymous

Comments about the web site: I try to read your Registry daily since I am extremely interested in this horrible disease since I lost a family member to it.

I'm from:

Email: -

How I found the page: -

My name is: Gary J. Toll

Comments about the web site: I linked this site from the Art Bell site. Thank you for providing the information that you have done. I am going to do the preventive measure that you mentioned. Thank you.

I'm from: Pahrump, Nevada (Home of Art Bell)

Email: - leejames@isat.com

How I found the page: - From the Art Bell web site.

My name is: Tony

Comments about the web site: The only strep I ever knew was strep throat. Every kid got it. Like mono. I began hearing about cases of group A striking people locally, in the Boston media, nothing since then. It's like it has gone away! Then I read comments (on your sight)from people in my area who have contracted group A. I didn't hear of those. I am terrified! Is it true Texas is up to 56 victims?

I'm from: Scared US citizen

Email: - deismlives@aol.com

How I found the page: - Surfing after hearing about Austin Texas. God help us....please!

My name is: Georgie Naumann

Comments about the web site: I am currently researching this disease for a feature I found it very useful and will be in touch soon to see if you could provide with any further information.I was pleased that there is a group of people working to help people who have this condition!

I'm from: London, England

Email: -

How I found the page: - Yahoo

My name is: Jesse Armstrong

Comments about the web site: Thanks for the info. I am using it for a report.

I'm from: Madras, Oregon U.S.A

Email: -

How I found the page: - I looked up strep A

My name is: Tim Farrell

Comments about the web site: I would like to thank you for putting this site together. I have a sister-in-law who is currently fighting for her life with this disease. When she was first admitted to Penn Univ. Trauma Ctr. the last week of February, I was shocked at the prognosis. I have found comfort in the stories your participants have submitted, and hope that the strength that they have shown will also show in me. I have been in the Web design and development business for 5 years. If there is anything I can do to help continue the success of this site, please notify me.

I'm from: Peabody, MA

Email: - tim.farrell@bmc.org

How I found the page: - search engine

My name is: Jim Glab, jglab@pacbell.net

Comments about the web site: I appreciate the valuable information on this webb site. I think it is very important for the public to have the opportunity to have access to important sources of information such as found on this site.

I'm from: Citrus Heights,CA

Email: - jglab@pacbell.net

How I found the page: - Art Bell's Webb site.

My name is: Sandra D. Lambert

Comments about the web site: The Redbook magazine April issue ran is running an article about NF along with other bacterias to be aware of. It is a good article, check it out.

I'm from: Marquette, MI

Email: -

How I found the page: - Donna and Jackie

My name is: Bernadette Kovac

Comments about the web site: On March 19, 1997 I had a surgical procedure done and contacted necrotizing fasciitis and had seven debidements with a two week stay in the hospital and it is a year later and I have not returned to work. I am not sure what my future holds because I am a paramedic/firefighter and very much need my abdominal muscles for heavy work. This has changed my life.

I'm from: Kansas City Kansas

Email: - Caseygirl131@juno.com

How I found the page: - Internet

My name is: Tammy Bradford

Comments about the web site: I really am glad that you take the time to update the public on this horrible striking surprise that attacks so many innocent people. I would like to know how to be able to have my mom's story on the memory page./ Her name and dob and death are there but, i want people to be able to highlight it and read her story. Please let me know how.

I'm from: Elizabethton, Tn.

Email: - luda@preferred.com

How I found the page: - typed nnff

My name is:

Comments about the web site: Bless you for what you are trying to do. I feel this is something that needs more attention. Keep up and please don't get descouraged. Good Luck

I'm from: San Bernardino, Ca. USA

Email: -

How I found the page: -

My name is: Cheryl

Comments about the web site: My father got it last August, 1997. He is doing ok now but I want to say that I really learned a lot on the internet. It is great to know that there is so much help in a time when it is needed so much!

I'm from: Santa Clara County

Email: -

How I found the page: - It was in one of the many stories.

My name is: Windy Blackmon

Comments about the web site: Your information was very helpful to me and my family. Three small children in my family were diagnosed with Strep A. Of the three children, two attend elementary school and have seen this infection spread through their school like wildfire. Some of their classmates had this infection and died in the last month. They are residents of Nixon, Texas, just outside of San Antonio. I think the schools should be better informed and should better inform the children because they too see what this infection has done to them and those around them. Thank you again.

I'm from: Merryville, LA USA

Email: -

How I found the page: - I looked up Strep A

My name is: Billie Dreyfuss

Comments about the web site: An acquaintance of ours lost his wife right around X-mas, 1995.She died of NNFF giving birth to a daughter. so I thought I might bring this site to the attention of her man, who is left to raise his baby.I notice as soon as Art Bell put up his link to your site that you started to get a lot of that the GOV'T planted this disease stuff. Is my understanding correct that occurences of this has been around a long time?--wasn't it President Wilson's son (or President's Coolidge's ?) who died of it after getting a small blister on his heel from his shoe while playing basketball? If the gov't wanted a germ for germ warfare testing, why would they use this one which seems to kill so few people and is so unpredictable as to where and how severely it will strike? Seems to me there are plenty of much more devastating organisms around. I am more interested in this disease from the point of view of what can be done to track, predict, prevent, and cure it from a public health point of view, and what self-care we can engage in as individuals so we won't have anymore of these shocking deaths like what happened to our community member whose wife died almost instantly during what should be one of the happiest events of a person's life. I think it's a waste of effort to think it's some government conspiracy. Thanks for the good info and I think I'll be giving anti-biotic ointment as X-mas presents.

I'm from: Las Cruces, NM

Email: - wbthorn@lascruces.com

How I found the page: - Link from Art Bell's web site.

My name is: Noreen Lauster

Comments about the web site: My Mother died from this disease in June of l992. At that time their was very litte information available concerning this disease. I appreciate all that you are doing to make people aware of this deadly disease. I hope that I will soon be able to contact you to obtain more information. Thank You, Noreen

I'm from: Plymouth ,Mich.

Email: -

How I found the page: - Search on the internet

My name is: Dr. Dallas L. Nash,II

Comments about the web site: Great service... Just wondering, do you have a registry of active occurances? i.e. Do you have a report relavent two 2 cases at Baptist Hosp. in Jackson MS?

I'm from: MS USA

Email: - lomosnet@worldnet.att.net

How I found the page: - Through CDC

My name is: Colette Surovy

Comments about the web site: Looking into what the symptoms are because I have many of these symptoms. Thank you.

I'm from: Kenora, Ontario, Canada

Email: - colette@voyageur.ca

How I found the page: - AltaVista

My name is: Greg A. Millerq

Comments about the web site: A friend of mine has just returned home after winning a bout with NF> We are grateful the doctors identified the bacteria quickly and were able to save his life. He has much damage in the throat and windapipe area, so eating is going to take some time. Your site was a great source of help and inspiration during this difficult time and we thank you for sharing your experience.

I'm from: Orlando, Florida, USA

Email: - pcgam@ix.netcom.com

How I found the page: - Net search on "necrotizing Fasciitis"

My name is: Susan Stolsig

Comments about the web site:

I'm from:

Email: -

How I found the page: -

My name is: Susan Stolsig

Comments about the web site: I was visiting this site in Jan 98 and it seems that even without the horrible occurances in Austin, Texas that medical people who aren't hooked up to the WEB, don't know anything about it. Especially, our ER rooms and outpatient clinics in our local areas. I appreciated seeing how much nurses and doctors want to know more about this. My brother in law is raising two children by himself since the death of my sister over 2 years ago(Dec. 23, 1995). I know he has been encouraged by what he has seen on this page. We need be informed to fight this! Thanks!!

I'm from: Moses Lake, WA

Email: -

How I found the page: - My mom told me after my sister Pam died in Dec 95.

My name is:

Comments about the web site: I am thankful that this site is available to educate the public on this disease. When my daughter was recently asked what her father died from her friend's mother's comment was that you read about NF but you really don't think people really die from it. My daughter referred her to your web site--thank you!

I'm from:

Email: -

How I found the page: -

My name is: John M. Greer

Comments about the web site: My wife was just diagnosed as having Step A in the bone tissue of her right big toe. It has been very painful. Surgery has been performed and part of her bone was shaved off. I'm searching for ifo. Wish us luck!

I'm from: Houston, TX

Email: - 104530,531@compuserve.com

How I found the page: - yahoo search

My name is: Larry Keeter

Comments about the web site:

I'm from: Richmond,Tx

Email: -

How I found the page: - art bell web site

My name is: donna

Comments about the web site: i am a grandma who lost her grandson to this terrible dease last year. my congradulatios to those who made it but this boy was only 16 and should have never died from this. i guess not enough information to the doctors for them to think about this.

I'm from: phoenix, az

Email: - db52080 {ryans birthday}

How I found the page: - searching the web on this dease

My name is: Leigh Ann Goodman

Comments about the web site:

I'm from: Alvin Texas

Email: - lagoodman@hotmail.com

How I found the page: - browsing

My name is: Deborah Corder

Comments about the web site: I would like to thank you for all the up to date information you have on your website. It is very informative.

I'm from: Knob Noster, Mo. , Johnson county

Email: -

How I found the page: -

My name is: Joseph

Comments about the web site: I saw a patient survive this and its end result. One of the news magazines gave a recent and low key report on it...it wasn't good enough. Itis amazing how quickly it can take a person.

I'm from: Houston, Tx

Email: - Enoina@aol.com

How I found the page: - Infoseek.com

My name is: Joe C Sandusky

Comments about the web site: I am a college student research Necrotizing Fasciitis and I think that your web site is very helpfull and informative.

I'm from: Danville

Email: -

How I found the page: -

My name is: Debbie Hitchcock

Comments about the web site: In Febuary I went in for a Tummy Tuck, I came out with flesh eating bacteria. 3 operations later the so called Doctor didn't know or care what i had. I ended up in the emergency room with an infectious disease Doctor doing proper test to realize what was wrong. The Doctor that gave this super Bug to me, Didn't want me to bother him anymore He asked my husband and myself to find another plastic surgeon. Which Thank God we did. It has been very traumatic and very horrific. I Pray to God, That medical people will start to care and stop ignoring the signs, They are there, they always are. Just Look!

I'm from: Marietta Georgia

Email: - DebcHit@webtv.net

How I found the page: - thru the CDC

My name is: Debbie Hitchcock

Comments about the web site: Ladies, You deserve an applause from every person living with this. Whether it be from survivors or loved ones lost families. This is an extraordinary page, open to help and inform others. College kids follow through get the word out. God Bless you all. Again Ladies, Thanks. Sincerely Debbie Hitchcock

I'm from: Marietta Georgia

Email: - DebcHit @webtv.net

How I found the page: - Thru CDC

My name is: Jennifer Riggins

Comments about the web site: My Mother is has been diagnosed with NF and is currently fighting for her life in ICU. She is 70 years old and a long term breast cancer patient. I would be interesting in knowing if there is any other survivors of NF out there who are also a long term cancer patient. Please contact me, I'd love to discuss this disease with you. thanks, jennifer

I'm from: Tampa, Fl

Email: - riggins@us.ibm.com

How I found the page: - net search

My name is: Kathy Sigafoos

Comments about the web site: I am a survivor with serious concerns about how doctors and HMOs handle this serious disease. I had horrible treatment from most of my doctors, because they were too involved with the approval of their own group in approving procedures and investigations of diseases that might require bringing in specialists from outside the area. Diagnosis was delyaed for approximately 2 weeks because of the local doctors unwillingness to bring a specialist to the local area.

I'm from: Ojai, CA

Email: - sigafoos@ojai.net

How I found the page: - I

My name is: Irma J. Roberts

Comments about the web site: I checked your wonderful site for information after learning that my brother-in-law is suffering from this disease. Thank you for all the wonderful information. It has been a great help to us at this time.

I'm from: Modesto, California, USA

Email: - irma55@aol.com

How I found the page: - search engines

My name is: Lynn Coakley

Comments about the web site: My sister in law is in the hospital with this right now.We are praying for her.

I'm from: New Brunswick ,Canada

Email: -

How I found the page: - Yahoo