The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

Mar 1, 1999 - 19:44

My name is: Rod Keller

Comments about the web site: I contracted NF in mid-December of 1998 in my pelvic area. I fought it for three days, thinking it was a bad flu. On the fourth day we went into the hospital. And only after a tentative diagnosis of a hernia, did the surgical team find the mysterious gray puss which, once cultured, was confirmed to be the product of NF bacteria. Most of my body’s systems shut down around that time. It was touch-and-go for about five days. During my 30+ days in the hospital, I endured seven rounds of exploratory and debreedment surgery, extremely heavy IV antibiotic therapy and daily hyperbaric oxygen sessions to combat the infection. It left me weak, exhausted, physically limited, and 15 pounds light of protein that my body re-allocated to healing the wounds. Faith brought me through. Two weeks after my hospital release -- six weeks after contracting NS -- I stubbornly went back to work. My wounds were still open. I required dressing changes twice a day. I hurt. I did everything I could to speed up my recovery. I forced myself to eat as much protein and high calorie food as possible; walked until I was exhausted. Probably over did it. But I was tired of thinking of myself as a patient, as a victim. I wanted my old life back. I am still alive. To paraphrase author Mark Helprin, “these words are, to some, trite and contrived; but to the souls who have ever been challenged on that count, this is the most delightful, profound thing one can ever say. I thank God every day.

I'm from: Sokane, WA USA

How I found the page: - My wife found it while I was in the hospital.

Mar 1, 1999 - 23:20

My name is: Mireille Ferdinand

Comments about the web site: This is my first time reading about this flesh eating bacteria. Although, this is a class project topic I am really happy to have learned about this.

I'm from: Miami Florida (USA)

How I found the page: - Yahoo Search

Mar 2, 1999 - 09:17

My name is: Loretta Myers, RN

Comments about the web site: Great website. Congratulations. Will your book have photos of actual patients?

I'm from: Elverson, PA 19520

How I found the page: - surfing the web.

Mar 2, 1999 - 17:32

My name is: Chris Young

Comments about the web site: I saw on the news last night that eleven people have died in the Chicago area of Strep A. It's the first time I've seen any kind of a warning about this! They told which symptoms to watch for and showed a picture of someone with this. It's about time this made the news! It's too bad eleven people had to die before they said anything about it though!

I'm from: South Milwaukee, WI

Email: - chrisy@mixcom.com

How I found the page: - Searching while my Mom was in the hospital with NF in 97.

Mar 3, 1999 - 00:33

My name is: CHARLES A. JOELSON

Comments about the web site: I also had necrotizing fasciitis on my left leg on the outside . Dr.Faber saved my life ,But also my left leg I own this Doctor my life for his care that he gave me at Mercy hospital in Des Moines,Iowa. my leg was cut open from my wrist to my ankle to the bore. It came on like a wildfire that can't be put out. I have a new understanding about what life is. live life to the fullest at all time because you never know what going to happen to you.

I'm from: Des Moines. Iowa American

Email: - 222464@aol.com

How I found the page: - search the web .

Mar 3, 1999 - 20:09

My name is: Ally

Comments about the web site: As a med. student researching "necrotizing fasciitis" as my independant study topic, I found this site very informative. It uses simple language that most can understand, whereas my medical encyclopedias are very complex in their use of diction. This site answered questions and gave me information I can apply to my study. Thanks!

I'm from: New York

Email: -

How I found the page: - Lycos search results

Mar 3, 1999 - 22:31

My name is: Lori

Comments about the web site: My son was 21 years old when he went into the hospital for an emergency appendictomy at the end of June, 1998. He was treated and released within three days. Within the week, his surgical site was hard as a rock and discolored yellow and red. He had been suffering from a slight fever and backaches. He had been examined by his primary surgeon on Friday and given a clean bill of health. By Sunday, he was admitted to the hospital and taken for surgery to determine if he had an abscess. That surgery lasted more than five hours and was just the first of at least six. We came very close to losing him. Today he has lost most of the tissue and some muscle on the right side of his torso to this killer. Skin grafts cover most of this area. I have told my son he is one of the bravest people I know. I do not know if I could deal with the personal loss. We try to focus on the fact that he is still here. I would like to hear from anyone in the York,PA area that has had experience with this disease. Please email.

I'm from: York, PA

Email: - mmurphy@cyberia.com

How I found the page: - surfing

Mar 4, 1999 - 09:36

My name is: Lai Kang Yiu

Comments about the web site: Please continue with your excellant work.

I'm from: Hong Kong

Email: - kylai23@hotmail.com

How I found the page: - looksmart

Mar 4, 1999 - 14:06

My name is: Sandy P.

Comments about the web site: It has been quite awhile since I have been back to read the heart-breaking stories. My son was diagnosed with this Group A Strep when he was just 2 months old. Doctors didn't believe me when I said there was something desperately wrong with him. His pediactric doctor and the ER doctors all told me he had a cold and it would get worse before it got better. That was the only thing they were right about! After taking him to the doctors and hospital for 3 days straight. He woke up with his belly enlarged and I again rushed him to the doctors and then next door to the hospital. I was told the bacteria had spread through his entire blood and it was now poisoning him. They told me he would not survive...that not many kids survive this bacterial infection because of their size. I was devistated but could not give up hope. I told myself that he could not die and that he wouldn't. The infection started around his left lung. The ER doctor put in IV into his shin bone and the reddish/black blisters appeared. They assured me that the blisters would heal and did some tests to see if the infection went into the bone. They said it did not. Well...after 1 week of no improvement. The doctors decided to call in a thoratic surgeon and he would have to go in and scrape my son's lung. He also had a portion of his lung removed. The blisters on his leg were medicated and left alone. From there...we waited until he slowly recoved. It was the longest 3 weeks of my life. Well...as an update. He is now 4 years old. The only problems he has are with his right leg. The infection destroyed part of the growth plates in his right leg (tibia)at the top and bottom of the bone. He has had 5 operations on his leg. First to correct the growth plates (which did not work) and then to correct the deformity that is in that leg. Recently he had his growth plates competely destroyed and his leg straighten and lengthened with an Ilizorov fixator. The proceedure took 6 months with the contraption on. His leg is beautiful now (scars and all). It is straight and longer than his other leg. He will need 2 more leg lengthening surgeries. If his doctor and the ER doctors would have just listened to me...my son would not have had to go through so much pain. I am very fortunate to have persisted. If I would not have...he would be an angel in heaven! I am very selfish...I wanted him for myself. My heart goes out to all who have had this horrible bacterial infection. With better education...doctors will recognize it and treatment can be started immediately. Which I believe is the KEY!

I'm from: Monroe, MI USA

Email: -

How I found the page: - it is bookmarked

Mar 4, 1999 - 14:57

My name is: Eloise E. Mayfield

Comments about the web site: My husband passed away July 19, 1998 from Necrotizing Fasciitis. He was misdiagnosed and died within 3 days in the hospital. After the 1st day a friend of mine asked could it be Necrotizing Fasciitis because all of the symptons were the same. I immediately called the hospital and told them but they chose not to believe me and said "Oh, no we don't think its that bad yet." I asked that they at least look into it and check to make sure. They didn't follow my request and it cost me my husband. I swore that I would find out everything I need to know about Necrotizing Fasciitis and do whatever I can to keep it from killing. I would like to be a volunteer and I will more than likily make a donation also. I do have a couple of questions. Do you know if the patients that died were in extreme pain when they died or do they pass away in their sleep? How does their body shut down? I'm hoping my husband died peacefully. Thanks, and I am greatful for this web site. Keep up the good work. Please contact me for anything.

I'm from: Chicago, Illinois 60613

Email: - mayfield@mail.litchfieldcavo.com or mayfield@litchfieldcavo.com

How I found the page: - I specifically researched it. I looked for anything on this subject in July but never found anything.

Mar 4, 1999 - 17:15

My name is: Christopher Palmer

Comments about the web site: My Grandma had it about a year ago in January. She survived it. It was mainly on her stomach. She survived only because she was heavy. She was in the hospital for about 8-10 months. She was in Kent Community Hospital in Grand Rapids, Michigan.

I'm from: Scott A.F.B., Illinois

Email: -

How I found the page: - infoseek.com

Mar 5, 1999 - 00:48

My name is: savannah crawford

Comments about the web site: i think this work you are doing is facinating. i chose this topic for a project at school, i think not very many know about the bacteria and i also hope to open their eyes about this. i am a tenth garder in Cottage Grove Oregon High school. Your site has been a wonderful help for me. thank you so much and keep up this work.

I'm from: cottage grove, oregon

Email: - cobbie15@aol.com

How I found the page: - i just looked it up on my own freewill

Mar 6, 1999 - 21:21

My name is: Carmen Baca Strohmeier

Comments about the web site: My husband Jim is a survivor of NF, and he is looking for legal resources because of the delay in his diagnosis. Jim is interested in getting the word out on this deadly disease. Jim lost his major and minor pec muscles due to NF. He was in ICU for 45 days and total time in the hospital was 100 days. The result of TSS left Jim with gangerous fingers and toes, which were amputated.

I'm from: Denver, Colorado, USA

Email: - thestrohmeiers@worldnet.att.net

How I found the page: - I've been on it before, and it's bookmarked.

Mar 7, 1999 - 21:34

My name is: Pat Vargas

Comments about the web site: Ijust wanted to thank you for having this information available to me. My Uncle has unfortunatly some how got this diseases.

I'm from: Salinas Ca.

Email: - mpbjvargas@aol

How I found the page: - searched

Mar 8, 1999 - 11:04

My name is: Jan Stegelman

Comments about the web site: My mother recently had this infection in her leg. She eventually got really good care at a large hospital, but the small community hospital where she was initially treated did not diagnose the problem immediately. She was in intensive care for four weeks, but is home now. I wish there was some way to prevent this from occuring again.

I'm from: Topeka, KS

Email: - JS4safety@aol.com

How I found the page: - Sister

Mar 8, 1999 - 13:50

My name is: cindy charlton

Comments about the web site: What a great job!! As a survivor of NF, I know how crucial it is to have information "out there" for the public. Yeah the bug is rare,but it ain't all that rare, so the best defense is to be educated! The Colorado state epidemiologist's office just recently advised the citizens of this beautiful state, that there are 150-250 reported cases of NF, in the state of Colorado every year. Pretty scary. Thank you both for getting the word out! It takes pretty special people to do the work you all are doing. By the way, as a result of my illness, I lost both my legs and my right hand. I've started a support group in the Denver area for amputees, and would be happy to support (well not financially) anyone who has lost a limb. The group does have a website at www.casteam.com. Keep up the good work ladies!!!!

I'm from: Englewood, Colorado

Email: - korisky@juno.com

How I found the page: - I already knew the address

Mar 10, 1999 - 09:17

My name is: Bridget Byrne

Comments about the web site: I am doing a report and this paged helped a lot. I believe that this is a really good site.

I'm from: Glenside, PA

Email: - Squipple

How I found the page: - we just searched

Mar 10, 1999 - 11:10

My name is: Elisa Shirey

Comments about the web site:

I'm from:

Email: -

How I found the page: -

Mar 10, 1999 - 22:24

My name is: Christopher Butler

Comments about the web site: I am doing a research paper on NF and this site help me out a great deal. The literature is informative and detailed. There is one thing that is not mentioned and I might be wrong on this but, it is good to mention that "Group A beta-henolytic streptococcus" is the bacteria that caused NF. Also the photos are exactly what I need. Thank You, Christopher Butler

I'm from: El Paso, T

Email: -

How I found the page: -

Mar 11, 1999 - 05:03

My name is: Kiki Krzywicki

Comments about the web site: My mother died on Feb. 17th from this horrible sneaky disease. I am still in disbelief that she's gone because it happened so fast.She had been complain of pain in her lower right groin area but nothing was there on sat morning, by sat night there was a small blister and by sun morning there was amuch larger rash. ( I am repeating what my brother and sister told me as I was not there. She had become disorientated and they thought it was because she was severely diabetic so they took her to the hospital but it took two & 1/2 days and several doctors before she was diagnosed. By then it was too late.She never had a fighting chance because no one knew what she had until it was too far gone. She was 74 and she died in my brother and sisters arms on their 49th birthday.I hope that everyone out there will try to help these brave and selfless women get the message out to as many people and health care providers as possible.I am looking for a way to undestand all of this and I am grateful for this opotunity.

I'm from: Toms River N.J. USA

Email: - grandcentral577@webtv.net

How I found the page: - looked up flesh eating disease

Mar 11, 1999 - 08:40

My name is: Thomas Diamond

Comments about the web site: I was diagnosed with the flesh eating disease on Feb 11, 1999. I spent 1 month in the hospital, and had a total of 7 operations on my right lower leg. The doctors managed to save my limb with the removal of my skin and muscle. Other treatments used were skin grafts and a hyperbaric chamber. I am currently recuperating at my appartment in Halifax, and plan to return to Toronto as soon as possible. I would like to thank everyone who stood by me during this difficult time. Your cards, gifts, and visits will always be in my heart. I could not have pulled through this without all of you.

I'm from: Halifax, Nova Scotia, Canada

Email: - tbdiamon@is2.dal.ca

How I found the page: - Dogpile search site

Mar 11, 1999 - 10:39

My name is: Laurie Fournier

Comments about the web site: I went looking for this website because my grandmother passed away last week from this horrible disease - she developed a rash and the next day they transferred her to another hospital and she went into cardiac arrest and died. The doctors said the infection went straight to her heart. Thanks for making this site available to people like me who need more information. God bless everyone who has made it through this disease.

I'm from: Deerfield Beach, Florida

Email: - Myboo4u2@aol.com

How I found the page: - looked up necrotizing sasciitis - grandmother died from it

Mar 11, 1999 - 18:43

My name is: Jonathan Nuckols

Comments about the web site: Your site is great! I had to do a project at school on a communicable disease and I heard about this disease on the news, so I picked it. Your site gave me a lot of information to use. Also it showed me thr symptoms so if I ever get it I know to go check it out. It also showed me how to prevent it from happening. Thanks!

I'm from: Stephens City, Virginia

Email: - jonny@shentel.net

How I found the page: - searched for it

Mar 12, 1999 - 13:25

My name is: Garry Lassman

Comments about the web site: To my friend Tom, who will overcome this viscious disease because of his strength, determination, and will. You are constantly in my thoughts and prayers. Stay strong, my love is with you. Garry

I'm from: Toronto

Email: -

How I found the page: - Thomas Diamond

Mar 12, 1999 - 15:08

My name is: anika wedel

Comments about the web site: As a nursing student, I know the importance of prevention and this website is an excellent example this aspect of public health.

I'm from: Indiana

Email: -

How I found the page: - searched under "flesh-eating bacteria"

Mar 13, 1999 - 18:31

My name is: katy diamond

Comments about the web site:

I'm from:

Email: -

How I found the page: -

Mar 13, 1999 - 18:35

My name is: katy diamond

Comments about the web site: My brother contracted this virus around a month ago and he is doing amazing. This experience has taught me that every monent in life is precious and we should savour every second we have with each other. Thomas, you are the most wonderful person I have ever known, you are an inspiration to us all. I love you with all my heart, love kucker.

I'm from: Toronto, Canada

Email: - sapeck@julian.uwo.ca

How I found the page: -

Mar 14, 1999 - 10:14

My name is: Timothy Trahey

Comments about the web site: I have found this site to be a God send of information. My mother passed away due to this.

I'm from: derborn Hts Michigan, United States

Email: - Irish1322@aol.com

How I found the page: - Searching randomly

Mar 14, 1999 - 22:13

My name is: Yves Zeitoun

Comments about the web site: To my friend Thomas Diamond, who was diagnosed with this disease about a month ago. He has miraculously overcome the initial horrendous consequences of this disease. He fought to save his leg until his doctors stopped the spread of the disease. He is now recovering and I know he will beat this ! Be strong Tommy, we all love you and wish you a quick and healthy return to Toronto.

I'm from: Toronto

Email: -

How I found the page: - Through Yahoo

Mar 15, 1999 - 22:07

My name is: Gayle Hutchins

Comments about the web site: Your story was so interesting, for someone like me who never heard of this flesh eating bacteria before. L hope my dear friend is as lucky as you are. hers was not caught as fast as your, she did see a doctor right away , her blood pressure dropped, he gave her presc for antibiotic, said that was bad looking and would take a couple weeks to clear up (she had a lump on her leg that was infected, which she thought was a boil) 5 days later i went to her house, she was so weak she couldn"t get up alone and the lump had broken and puss was running out of it. Now it was spread all over her leg. i got sick when i looked at it. when we got her up the bad odor was so bad , i have never smelt anything so bad in all my life. Took her to the hospital right away. This was the 9th of mar l999. she is having her 4th surgery tomorrow am, is in select care at the hosp, and has been out most of the time. By the way she has a new doctor, i myself blame her family doctor that sent her home and should have followed up on this when she was in his office. She did have the flu symtoms, hadn't eaten hardly nothing in 5 days, just drank lots of water. Don"t really know where we stand at this time with her, the doctor did say she will be staying in the hosp at least 3 more weeks if not longer. where they cut out all this infection above her knee,on the inside of her leg, the wound is the size of a saucer (that you put a cup on) my dear girl i learned so much from reading your story, i am so happy for you. It brings tears to my eyes. Say a prayer that this lady is as lucky as you. God Bless You and i wish you all the happiness in the world.

I'm from: Michigan

Email: - sassyassnana@yahoo.com

How I found the page: - just reading everything i can find on this disease

Mar 17, 1999 - 04:01

My name is: Hanan

Comments about the web site: This site is very informative and I LOVE IT!

I'm from: Sydney, Australia

Email: -

How I found the page: - Browsing through yahoo

Mar 17, 1999 - 11:35

My name is: Kim Nichols

Comments about the web site: EXCELLENT WEB SITE. My mother was diagnosed with Group A Strep. about 5 months ago. She went through a series of tests over a 12 month period until finally she knew what she had. Mom was put on anti-inflammitories 5 months ago and antibiotics. 2 months ago they took her off antibiotics and said she should walk and get plenty of excercise, but her legs ache so bad that she can hardly do so. The stiffness and aches seem to travel from her neck and arms all the way to her legs. Mostly her legs. The Doctors have said there is nothing else they can do! I am going crazy watching my mother suffer---please can anyone help!!!!! Similarities maybe????

I'm from: Hamilton, Ontario-Canada

Email: - kim.nichols@ca.eyi.com

How I found the page: - Feah-eating search

Mar 17, 1999 - 12:06

My name is: Kim Nichols

Comments about the web site: EXCELLENT WEB SITE. My mother was diagnosed with Group A Strep. about 5 months ago. She went through a series of tests over a 12 month period until finally she knew what she had. Mom was put on anti-inflammitories 5 months ago and antibiotics. 2 months ago they took her off antibiotics and said she should walk and get plenty of excercise, but her legs ache so bad that she can hardly do so. The stiffness and aches seem to travel from her neck and arms all the way to her legs. Mostly her legs. The Doctors have said there is nothing else they can do! I am going crazy watching my mother suffer---please can anyone help!!!!! Similarities maybe????

I'm from: Hamilton, Ontario-Canada

Email: - kim.nichols@ca.eyi.com

How I found the page: - FLESH-EATING search

Mar 18, 1999 - 11:40

My name is: Dr.Chetan Dhandore[M.S]

Comments about the web site: I found your website amazing!! I am doing research on 'NF' at W.Wanless Hospital in India.i am sure any health personnel with interest in 'NF' would find this website very useful.

I'm from: Miraj,[M.S],INDIA.

Email: - chetan_kalakar@hotmail.com

How I found the page: - internet surfing

Mar 18, 1999 - 17:20

My name is: ashley barlow

Comments about the web site: two years i go i had flesh disease then it went bye bye

I'm from: alberta

Email: - 02ashbar@yellowhead.gyrd.ab.ca

How I found the page: -

Mar 19, 1999 - 12:26

My name is: Nicholas Moore

Comments about the web site: This disease is really sick. I hope the public can be more aware of it,and doctarsalso, so that there are not many misdiganosed cases.

I'm from: South Haven MI USA

Email: -

How I found the page: - metacrawler

Mar 19, 1999 - 14:44

My name is: Laura Teubert

Comments about the web site: My daughter suffered from this disease in 1994. She has severe scarring and had to have a skin graph. I would love to hear from other people eith children who have suffered from this disease.

I'm from: Chicago, Illinois

Email: - lkt1011

How I found the page: - browsing

Mar 19, 1999 - 15:56

My name is: Pete Lafond

Comments about the web site: Great site

I'm from: Rochester, NY USA

Email: - plafond@autindetek.com

How I found the page: - looksmart

Mar 20, 1999 - 08:24

My name is: sherri firth

Comments about the web site:

I'm from: grimsby ont

Email: - sfirth@sprint.ca

How I found the page: - brother

Mar 20, 1999 - 09:40

My name is: Donna Short

Comments about the web site: Last year my brother-in-law, Bo Salisbury, was "struck" with NF - fortunately he survived - what a great page - my donation will be in the mail.

I'm from: La Habra, CA

Email: - Donna Short@aol.com

How I found the page: - Bo Salisbury

Mar 21, 1999 - 16:59

My name is: Jessie

Comments about the web site: a very informative page. keep up the good work

I'm from: las vegas, nevada

Email: -

How I found the page: -

Mar 21, 1999 - 18:48

My name is: Suzanne Walters

Comments about the web site: I am recovering from NF and was released from the hospital yesterday. I look forward to learning more about this illness and its recovery stages. This has really been a nightmare for me but I feel very grateful to have survived at all.

I'm from: Blairstown, NJ, USA

Email: - suzwal@aol.com

How I found the page: - my friend learned of my illness and found you online

Mar 22, 1999 - 18:38

My name is: Trace' Dotson, MSIV

Comments about the web site: All of God's blessings and comfort for the families of those lost to this disease, and all of God's continued support, strength, and nurturing for the survivors as well as those of you have have taken up the cause to educate others. May it teach and touch others as it has me!

I'm from: Detroit, Michigan U.S.A.

Email: - dotsontr@umdnj.edu

How I found the page: - I am a medical student presenting NF as an Infectious Diseases presenation

Mar 23, 1999 - 02:31

My name is: nancy webb

Comments about the web site: survived NF on left arm; concerned about the appearance of my arm after graft heals. would like to have contact with others who have been through this ordeal.

I'm from: vancouver, bc, canada

Email: - newebb@lynx.bc.ca

How I found the page: - browsing/searched

Mar 23, 1999 - 10:09

My name is: Carla McKinzey

Comments about the web site: This gives me hope. Thank you!

I'm from:

Email: -

How I found the page: -

Mar 23, 1999 - 17:40

My name is: Jennifer Tighe

Comments about the web site: I thought this web site was an excellent resource for my presentation on the topic to my nursing clinical group. I am a 2nd year nursing student and it was very helpful Thanks

I'm from: Warsaw/Canada/Ontario

Email: -

How I found the page: - Through a yahoo search

Mar 24, 1999 - 16:54

My name is: Krista Lowther

Comments about the web site: This page has been very educating. I hope that all people who have been to this site will pass on the information to others and educate the rest of the world. I plan to do so myself as my biology I.S.U is on NF. I hope many will make donations to the NNFF because I can understand how hard it must be, being a non-profit organization put together by two people the same as you and I. Please help these people spread the word and knowledge of the horrid disease and help people become aware. i wish i had seen the guinness special on it. sounds like it was very informative. thank you for this web page and i will do all i can to help you. i give the most support to those with this disease, the survivors and loved ones of those who've had or have NF.

I'm from: Brampton, Ontario, Canada

Email: - star_blue@hotmail.com

How I found the page: - by searching for a school project

Mar 24, 1999 - 21:39

My name is: Jim Cox

Comments about the web site: I am a survivor of NF. I was stricken suddenly, two years ago today, March 24, 1997. I was not expected to survive. Lost large area of right chest wall, pectoral, flank, & fist sized chunk of right arm. Went into Septic Shock, blood presure bottomed to undetctable on Med-Evac flight. Nerve damage to hands and feet, optic nerve stroke cost 50% vision loss. I did not realize there were so many of us who've been stricken with this disease. I am struck by the same theme of TRAUMA/STUNNED/DISBELIEF carried in almost all survivor accounts. They so errily mirror my own reactions. I am 46 year old male in excellent health 'till NF struck. Have come long way in two years with GOD & FAMILY'S LOVE & SUPPORT. Would like to hear from others.

I'm from: Pottstown, Pa.

Email: - COXYBZ@AOL.COM

How I found the page: - A Friend

Mar 25, 1999 - 15:37

My name is: Lori Wood

Comments about the web site: Thankyou so much for this most informative site. It has answered so many of my questions at a time when someone very near and dear is fighting this terrible infection. Thanks again!

I'm from: Belleville, Ont. Canada

Email: -

How I found the page: -

Mar 26, 1999 - 16:33

My name is: Mckechnie

Comments about the web site:

I'm from:

Email: -

How I found the page: -

Mar 26, 1999 - 16:35

My name is: Mckechnie

Comments about the web site: Have you any information with regard to the impact of this condition in the United Kingdom or Europe

I'm from: Scotland

Email: - Marabbot@aol.com

How I found the page: - web

Mar 28, 1999 - 07:39

My name is: Chris Yemm

Comments about the web site: I developed NF following a hysterectomy operation in November 1998. A second operation was performed two days after my initial surgery and a lot of tissue was cut away from my stomach. I spend some time in Intensive Care and the High Dependency Unit at my local hospital and am now (March 1999) still receiving daily treatment from the district nurses. I would be interested in hearing of other cases in the UK.

I'm from: Norwich, Norfolk - United Kingdom

Email: - chrissy@cyemm.freeserve.co.uk

How I found the page: - Browsing the internet

Mar 29, 1999 - 04:22

My name is: D Hall

Comments about the web site: Great info. I am an er registration clerk at a hospital and have seen two cases of NF come thru our hospital in 48 hours and was very concerned. Wanted to know if this was contagious thru direct contact with the wound. God speed to everyone affected by this disease.

I'm from: somewhere in Ohio

Email: - freckledtweets@hotmail.com

How I found the page: - searched flesh eating bacteria

Mar 30, 1999 - 00:12

My name is: CHRISTIE

Comments about the web site: MY BROTHER DIED FROM THIS HORRIBLE DISEASE AS A RESULT OF A MISDIAGNOSIS. HE WOULD HAVE SURVIVED IF HE HAD BEEN PROPERLY TREATED. I AM INTERESTED IN HEARING FROM OTHERS WHO HAVE LOST FAMILY MEMBERS DUE TO A MISDIAGNOSIS AND WHETHER OR NOT THEY ARE PURSUING ANY LEGAL REMEDIES.

I'm from: Nevada

Email: - dunbaby@aol.com

How I found the page: -

Mar 30, 1999 - 22:14

My name is: ED JONES

Comments about the web site: I HAVE BEEN DIAGANOISED WITH CELLUTITIS, AND 2 YRS AGO MY MOTHER DIED WITH N.F...I AM CURRENTLY TAKING AUGMENTIN, I HAVE A GREENISH, BLACK DRAINAGE WITH A VERY POIGENT ODOR.. I WILL BE SEEING A SPECIALIST THIS WEEK TO SEE ABOUT A DEBREIVEMENT..THANKS SO MUCH FOR INFO ON YOUR HOMEPAGE..IN THE NEAR FURTURE WE WILL BE SENDING A DONATION IN MEMORY OF MY MOTHER ( MARY JONES )...AGAIN THANKS FOR THE INFO ON YOUR HOME PAGE IT WAS VERY HELPFUL!!!! GOD BLESS YOU ALL..

I'm from: COFFEYVILLE, KANSAS

Email: - FOOT@HORIZON.HIT.NET

How I found the page: - ON THE INTERNET

Mar 30, 1999 - 23:12

My name is: Kathy

Comments about the web site: My mother died from NF Jan 23,1999. She had flu symptoms several days earlier. She went to the hospital on Jan 22, 99 early a.m. None of the doctors or nurses had any idea what was wrong with her or even considered it to be anything serious The infectious decease doctor was not be planning to check on mom until later that day or the next day; sometime after he had reviewed ER docs. After many complaints from myself, sister, and brother a doctor just walking down the hall was asked by a nurse to take a look at mom. He called another collegue into the room and all hell broke loose. Unfortunately by this time, the small patch on her leg had spread to her entire leg, and while these docs were in the room (approx 15 min) it jumped to her shoulder and back. She was gone by the next early morning. Until I found this site, I was lead to believe NF was very rare and no one survived. The entire medical community seem to have their heads in to sand about NF.

I'm from: OHIO

Email: - marthome@msn.com

How I found the page: - Searching under Flesh eating bacteria.

Mar 31, 1999 - 02:21

My name is: Evan Buntman

Comments about the web site: Best wishes and speedy recovery to Tom Diamond. Keep up your strength and determination. Its difficult being so far away to show my support and love but know you are in my thoughts and prayers. Hope I will see you soon.

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