The NNFF guestbook is the heart of our foundation -- so many people have found kinship and support in each other! Please spend some time reading through the entries made throughout the past three years (click icon on right). Talk about your experience! Keep in mind that if you have an urgent question, you should email Donna or Jackie as we do not review the guestbook on a daily basis!

My name is: bob.4444_@excite.com

Comments about the web site: Thank you for your web site. Thanks be to God, my wife just recently survived NF. Doctors and nurses called her survival a miracle. Your site has been of valuable assistance. I have some questions I will submit by e-mail.

I'm from:

Email: - bob.4444_@excite.com

How I found the page: - web search on Excite

Apr 1, 1999 - 17:23

My name is: Lauren Galmiche

Comments about the web site: Hi! I am a BiologyI student at Picayune Memorial High School. I was assigned a report to do on Streptacoccus A. Your website was fabulous in giving me information and pictures. The only thing it could use is pictures of the bacteria under a microscope. It was a wonderful resource that I will request to my classmates. Thanks for your information!

I'm from: Picayune, MS

Email: - lauryn_g12@hotmail.com

How I found the page: - under a search

Apr 1, 1999 - 21:28

My name is: Brent Bean

Comments about the web site:

I'm from: St. Joseph, MI. USA

Email: -

How I found the page: - Search from Internet Browser

Apr 1, 1999 - 21:39

My name is: Celeste Thibodeaux

Comments about the web site: My brother became ill with this disease this past month, but we were lucky in that we did not lose him. Several days went by and we and the health care professionals did not know what was wrong with him. It was very alarming that doctors had no clue about what was my brother's problem. People need to be educated about this disease! I am thankful to have found your website and plan on supporting the cause.

I'm from: Gonzales, Louisiana, USA

Email: - celestet@ucfc.com

How I found the page: - web search under FLESH EATING BACTERIA

Apr 2, 1999 - 03:44

My name is: Shelley Williams

Comments about the web site: Hi, ladies. I never got the forms to fill out for telling my NF story. You can still send them to me if you want: 1190 Balsamo Avenue, Simi Valley CA 93065. I'm finally going to get my shoulder replacement -- maybe. Most doctors are scared to death to touch me, but an ortho surgeon in Long Beach is taking needle aspirations of my shoulder fluids to test for presence of residual staph A infection. First test came back clear. Two more to go. If they're both clear he will replace my shoulder joint to alleviate pain and give me back about 60% movement. If he's successful with the shoulder I might get him to work on my ankle. I'm tired of walking with a brace. Hope all is going well with you. I'm sending a donation tonight. I don't have much, and what I do have still goes to doctors and pharmacies and test labs but I have a little left over. Hope it helps. God bless you both, Shelley

I'm from: Simi Valley California USA

Email: - Sillyebub@aol.com

How I found the page: - cruising the net about a year ago

Apr 2, 1999 - 06:38

My name is: Scott

Comments about the web site: * PLEASE NOTE * Guinness World Records is suppose to re-run the show TONIGHT (4-2-99) that is partially about N.F. Some of us seen it the first time it ran about 6 months ago. It is very educational to all and has some pretty graphic pictures of people with N.F. Please take time to watch or tape it. Take Care to all !!!

I'm from: Ohio / USA

Email: - bigbob54@nwonline.net

How I found the page: - Survivor to N.F. as of 1/19/97

Apr 2, 1999 - 16:41

My name is: Erin Conway

Comments about the web site:

I'm from: Kington, Canada

Email: -

How I found the page: - a friend.......

Apr 2, 1999 - 21:25

My name is: Aditi Pai

Comments about the web site: Thank you for the valuable information. I'm definitely more aware of everything now. Can you send me more information, even regarding your research developments. Thank you

I'm from: Toronto Ontario Canada

Email: - aipai@netscape.net

How I found the page: - from yahoo.com

Apr 3, 1999 - 00:39

My name is: Christy Ramos

Comments about the web site: I saw the segment about the disease on Guiness World Record. It was so interesting that I gathered information from your site to do my oral presentation.

I'm from: Hercules,CA

Email: - christydc15@yahoo.com

How I found the page: - "yahoo"

Apr 3, 1999 - 14:37

My name is: Elaine Bakken

Comments about the web site: I took an interest in knowing about this bacteria because a friend of mine was afflicted with it. She said in the hospital it was referred to as a flesh eating bacteria and I wanted to know if it had a specific name, and how it could cause all the suffering that my friend is going through. She was told she could have lost her arm or even her life. She has had plastic surgery and is going to therapy now for the pain in her hands. The graft on her arm is looking better so I as very very happy for my friend that she is a survivor. Excelsior

I'm from: Excelsior, MN USAI looked

Email: -

How I found the page: - I used Yahoo to find information

Apr 3, 1999 - 17:02

My name is: CHARMIN WHITE

Comments about the web site: APPRECIATE YOUR ENDURANCE AND FAITH IN YOURSELF DURING ALL OF YOUR RECOVERY. yOU HAVE OFFERED ALOT OF VALUED MEDICAL INFORMATION RELATED TO STREP A, BUT COULD YOU POSSIBLY OFFER SOME POSSIBLE EXPLAINATION FOR YOUR INITIAL CONTACT. WAS THERE A DECISION ON WERE YOUR EXPOSURE CAME FROM? THANK YOU. THANK YOU AGAIN....

I'm from: SAN ANTONIO, TEXAS USA

Email: - whitecb@uthscsa.edu

How I found the page: - friend had fatal disease

Apr 5, 1999 - 09:34

My name is: Katie Brouillard

Comments about the web site: I would like some additional information on this if possible. Some statistics would be great. I'm doing a report on Necrotizing Fasciitis. Thank you very much

I'm from: Waterbury, CT

Email: - kbrouillard@hotmail.com

How I found the page: -

Apr 5, 1999 - 15:04

My name is: Richard Leland White, Sr.

Comments about the web site: I work as a "Peer Educator" for Harm Reduction Services, Inc. in Sacramento, California. Thanx!!!

I'm from: Sacramento

Email: -

How I found the page: - By searching

Apr 5, 1999 - 21:48

My name is: CPL Jared Costello

Comments about the web site: Interesting, I've had Celuitius twice in the last two years, and reading your page has brought new ideas of something else, the Doctor has told me that you should only get Celuitius once, mybe it wasn't.

I'm from: Vancouver, WA, USA

Email: - JACOSTELLO@email.com; costelloja@3fssg.usmc.mil

How I found the page: - Father pointed it out

Apr 7, 1999 - 23:52

My name is: Rachael

Comments about the web site: Hi, This is a very well done web site and it gets the point across about how it can affect your everyday person. The reason why I came to this site to start off with is because I am doing a school project. I just came hear to get imformation, which I did but then I started to get into the stories of the cases of NNFF, it has touched me. This is a great site and is greatly appreciated. Thank You :)

I'm from: Canada

Email: - corn_luver@hotmail.com

How I found the page: - Search Engine

Apr 8, 1999 - 10:22

My name is: Hue G. Rection

Comments about the web site: hi

I'm from: no where

Email: -

How I found the page: - dogpile

Apr 8, 1999 - 12:59

My name is: fatima

Comments about the web site:

I'm from: Ontario canada

Email: -

How I found the page: -

Apr 8, 1999 - 13:08

My name is: Fatima

Comments about the web site: I am doing a research paper for my biology class. I found your info. to be very informative and useful.

I'm from: Ontario canada

Email: -

How I found the page: - search engine

Apr 8, 1999 - 14:01

My name is: may elliot

Comments about the web site: great information site

I'm from: canada

Email: - may_elliot@hotmail.com

How I found the page: - through yahoo!

Apr 9, 1999 - 10:16

My name is: Jill Knight

Comments about the web site: I am extremely interested in this disease. Please send me any new information you get.

I'm from: Guin, Alabama, USA

Email: - djnite122hotmail.com

How I found the page: - search on internet

Apr 9, 1999 - 19:17

My name is: MR. FOSTER

Comments about the web site:

I'm from: HONOLULU, HI

Email: -

How I found the page: - YAHOO

Apr 10, 1999 - 01:19

My name is: paul ivans/////////////// pivans@home.com

Comments about the web site: I just came from the hospital after a visit with my cousin , who is a diabetic. He is about the same age as I am. My birthday was april 8 born in 1936. The person in the next bed has the flesh eating disease according to my cousin, John Hartman. John has diabetis which caused a lack of oxygen to his heal . The heel flesh rotted and had to be removed. The surgeon cut a piece of the muscle from the arm and transplanted it by plastic surgury to the heel. The vien from the crotch area to the heel was inverted and sown back in place to allow oxygen laen blood to reach the plastic surgury site. It shuld be alright and then they can proceed to the other leg and do the same thing . john has been i n the hosital for over a month. The person in the next bed just came in with the flesh eating disease after a fall in the local school gounds while playing ball. The fall and the diabetis complications seem to have caues similar results.

I'm from:

Email: - pivans@home.com

How I found the page: - by looking up --flesh eating disease

Apr 11, 1999 - 22:21

My name is: John Buckley

Comments about the web site:

I'm from: Petaluma, California

Email: - jabbuck@mindspring.com

How I found the page: - friend

Apr 14, 1999 - 16:01

My name is: Javier Almanza

Comments about the web site: Lost a brother just last week to this infection.

I'm from: San Jose, California (USA)

Email: - jakafowl@ix.netcom.com

How I found the page: - noted to me by my sister

Apr 14, 1999 - 19:36

My name is: Lauren Peele

Comments about the web site: This is perhaps the most bizarre illness I have ever heard of. A boyfriend of mine from the past who was also a friend was tragically killed from this strange disease. So tragic. God Bless you all.

I'm from: Columbia, South Carolina

Email: - Lauren1121@aol.com

How I found the page: - through Carey Porter. Her son died from NF

Apr 15, 1999 - 08:55

My name is: Wendy Maclean

Comments about the web site: My Aunt is currently fighting this disease. Thank you, your site gave me some very valuable information to share with my family.

I'm from: Toronto, Ontario

Email: -

How I found the page: - Yahoo search engine

Apr 15, 1999 - 10:43

My name is: James Sparks

Comments about the web site: I had to do project on this and other Strep. pyogenes disorders. This is the first site i found with the all of the information i needed. Thanks!

I'm from: Memphis, TN

Email: -

How I found the page: - Alta Vista

Apr 15, 1999 - 21:05

My name is: Greg Rauch

Comments about the web site: I am a firefighter/Paramedic working in the Northern Virginia Area. After 12+ years of EMS experience, I encountered my fisrt patient with NF yesterday...your site was very helpful. I learned quite a bit & know how to reach out to this patient

I'm from: Fairfax, Virgina

Email: - rauchhouse@aol.com

How I found the page: - web search

Apr 16, 1999 - 17:28

My name is: Erin

Comments about the web site:

I'm from: North Carolina

Email: -

How I found the page: - Research Project

Apr 18, 1999 - 15:40

My name is: SHARON BLUMBERG

Comments about the web site: I LOST MY DAD TO THIS HORRIBLE DISEASE JANUARY 1995, I HAVEN'T BEEN TO THE SITE FOR AWHILE, I CAN NOT BELIEVE HOIW MANY MORE CASES THERE HAVE BEEN. BUT IT IS GOOD THAT THEY ARE ALL NOT LOSES AS WE HAD TO DEAL WITH. KEEP UP THE GOOD WORK.

I'm from: SOMERS POINT, N.J.

Email: - SUNMOM1@AOL.COM

How I found the page: -

Apr 20, 1999 - 09:55

My name is: Sophie Eicher

Comments about the web site: I think that you guys are wonderful for try ing to save the people that are diagnosed with flesh-eating bacteria. I have to do a report on this desiese and you guys really helped me find what I needed. Thank you so much for making this site possible.

I'm from: Lincoln, NE

Email: -

How I found the page: - My computer teacher

Apr 20, 1999 - 15:42

My name is: Rena

Comments about the web site: My neice passed away today after a valiant struggle with this nightmare of a disease.

I'm from: Phila. PA USA

Email: -

How I found the page: -

Apr 20, 1999 - 20:39

My name is: Lucrecia Dallas

Comments about the web site: I think that this is a horrible disease. It, thankfully, has not effected anyone in my life as of now, but I appreciate and honor those who have had to go through it. I came upon this site while researching NF for a school project. I am in grade 10 and have been interested in this subject since two years ago when I first heard about it. I am just going to say one more thing. For all those with this horrible condition (or whatever you call it) there are thousand like me who support you. :) @-,--,--- Lucrecia

I'm from: I Am CaNaDiAn!!!

Email: - Sorry!! ^o^ *u*

How I found the page: - research...

Apr 21, 1999 - 17:36

My name is: Tiffany

Comments about the web site: I found this site "accidentally" when I was trying to figure out exactly how to treat a huge blood blister that I got on my toe from playing basketball. By now, I have read most of this whole site, and I have learned much more than I ever knew about this terrible infection. I was also touched by the stories of the survivors and those who were not fortunate enough to escape with their lives. I am also much more aware of the precautions I need to take with my blood blister (a SMALL inconvenience when compared with the effects of NF!) in case it pops to reduce the chances of further infection. With all the cuts, bruises, blisters, scrapes, mosquito bites, etc. that my active lifestyle brings to me, I always seem to have some opening in my skin. I am glad that this site has made me more aware of one possible danger of not taking care of my small wounds. Before I saw this site, I was never too concerned about wound care, but now I think I'll do a lot better about it. I don't think it's an overreaction; after reading the stories here, I see that it can happen to anybody and (pardon the cliche) it's better to be safe than sorry! Thanks for all of your work on this site, for the support system you provide for NF victims and their loved ones, and also for the education you give to everyone else. It would be interesting to know how many lives have been (and will be) saved because someone saw this site...

I'm from: Charlottesville, VA

Email: - tas3t@blue.unix.virginia.edu

How I found the page: - searching under "blood blister" to see exactly what to do about one

Apr 21, 1999 - 18:27

My name is: David W.

Comments about the web site: I am a student researching Necrotizing Fasciitis. Thanks for posting the excllent info!

I'm from: Portland

Email: -

How I found the page: - Necrotizing Fasciitis information and photos

Apr 21, 1999 - 19:13

My name is: Nichole Ellis Age.15

Comments about the web site: I enjoyed your web site and I learned alot.

I'm from: usa

Email: - Princezserenity@hotmail.com

How I found the page: - I'm participating in an info fair

Apr 22, 1999 - 14:53

My name is: O Lodics

Comments about the web site: My sister did not survive the NF

I'm from: Valparaiso, Indiana

Email: - olodics@yahoo.com

How I found the page: - Yahoo

Apr 24, 1999 - 21:59

My name is: Beverly Fuqua

Comments about the web site: I am once again making a donation to your organization. I feel like sharing our stories has helped my family and myself accept the death of Jim Douglas. It has been one year and we are making some progress in accepting this. Thank you very much. This site has really helped. We will always miss him but now we know we are not in it alone.

I'm from: Denver, Colorado U.

Email: -

How I found the page: -

Apr 24, 1999 - 22:01

My name is: Beverly Fuqua

Comments about the web site: I am once again making a donation to your organization. I feel like sharing our stories has helped my family and myself accept the death of Jim Douglas. It has been one year and we are making some progress in accepting this. Thank you very much. This site has really helped. We will always miss him but now we know we are not in it alone.

I'm from: Denver, Colorado U. S A.

Email: - L4805 @aol.com

How I found the page: - looking up Flesh Eating Bacteria

Apr 25, 1999 - 13:22

My name is: Sue , Nick and Marshall Bassett

Comments about the web site: Im very impressed with your web page. Im happy to see you have the information and true stories so people can learn about this deadley bacteria. My daughter died March 13th, sprained ankel... Well thats what they said in the emergency room. She came home Tuesday and died friday.The autopsey showed Strep and a fatally deteriorated heart. I feed her dinner friday and she said she felt better and the swelling had gone down in the ankel. I was calling 911 at 1:30am while giving her CPR ...........she was pronounced dead at 2:08.If I had known the symptoms of Strep, she may have lived. I hope many people read your page and become more informed about this killing bacteria. I miss my daughter very much, she was my best friend!! Brook Dawnyll Warpenburg Born January 16,1975 died March 13, 1999 Thanks again Sue Bassett

I'm from: Spokane,Washington

Email: - Suzbassett@aol.com

How I found the page: - searched for cases on strep bacteria

Apr 26, 1999 - 19:50

My name is: Rick Burkel

Comments about the web site: My Sister-in-law lost her fight with NF on Apr. 16, 1999. She didn't have a chance. I don't think she ever knew what it was that hit her. She was very healthy and evry health wise. April 13th. she was in pain then she was gone. Learn about this "thing", we are learning too late. Lucy lived in Annandale, VA.

I'm from: Owensboro, Ky. USA

Email: - Briar47@aol

How I found the page: - A friend gave me address

Apr 27, 1999 - 11:28

My name is: SHAE

Comments about the web site: YOUR SIGHT REALLY HELPED ME WITH A RESEARCH PAPER IDID FOR CLASS.

I'm from: PITTSBURGH

Email: - shae37@yahoo.com

How I found the page: - looking through the internet

Apr 28, 1999 - 11:41

My name is: Vicki Staton

Comments about the web site: It is a year ago today that I was diagnosed with NF. As today is an important milestone, I would just like to celebrate with other survivors that I am alive to enjoy the beautiful sunshine and to see my wonderful son smiling. To anyone who is suffering or anyone who has a family member or friend suffering, fight, fight and fight again, life is worth it.

I'm from: Reading, Berkshire UK

Email: - Rodnic@compuserve.com

How I found the page: - I am a regular visitor.

Apr 28, 1999 - 13:01

My name is: Michelle Shivick

Comments about the web site: I have been a regular visitor to this website for the last year. My fiance, Michael, is a survivor of NF. He battled this horrible disease in Mar/Apr 1998. Our thoughts are prayers are with everyone who has lost a loved one from this disease and those who are currently battling it. We can only hope that the medical professionals can learn to diagnos this earlier!!

I'm from: Middletown, Delaware, USA

Email: - michelle.shivick@irwinmortgage.com

How I found the page: - a year ago, while searching for information after my fiance was diagnosed

Apr 28, 1999 - 15:33

My name is: Lezlie Freud

Comments about the web site: My prayers are with everyone of you who has this disease. Stay strong and god will help you out. Just remember one thing, god works in mysterious ways. I pray that god will keep you strong. I will pray for everyone. love, Lezlie.

I'm from: Parmelee, south dakota

Email: - shortstuff_666@yahoo.com

How I found the page: -

Apr 28, 1999 - 17:03

My name is: Janet Spencer

Comments about the web site: I also survived NF and have recently celebrated the two year mark of "life after". This site has brought so much information, support and contentment to me over the past 1 1/2 years. Donna and Jackie, thank you for continuing to create a place where people can truely understand and sympathize with each other the numerous challenges this disease can cause. I too was not diagnosed soon enough and as a result lost extensive tissue and some muscle. It has been a long road to recover physically, but even longer emotionally, as so many of you know. I thank God each day for the blessings he provides. It is very important to me now to live each day to its fullest and love those around me so unconditionally. Life can be taken away so quickly. I know God's love will be with each of you as you continue with your lives. I live in Lubbock, Texas and even though we have the largest medical community in northern west Texas, the doctors still are very lacking in their information and diagnosis of NF. I have pursued a lawsuit and today was told by the lawyer that the case is too iffy because it is such a rare disease and that I am basically recovered and alive. She noted that the doctors would probably instead be praised for giving me such quick attention after my mother rushed me to the hospital 5 days after I saw the doctor complaining of a pain in my leg that there was no reasonable explanation for. He did a Doppler, said it wasn't a DVT and sent me home. I was 35 weeks pregnant with twins, you would think an OB/GYN would be more concerned. I would be gratful for any advice or information that could help me decide what to do next. My time is almost up. I am returning to teaching in Aug. after two years off and look forward for the opportunity to continue informing people of this disease. God Bless all of you and again, thank you for a great site for info and support for all.

I'm from: Lubbock, Texas

Email: - Jspencer2@email.msn.com

How I found the page: - Found it year and a half ago research NF.

Apr 28, 1999 - 22:18

My name is: Christy

Comments about the web site: I just very recently lost my mother to this disease earlier this month - she was 55. It was very sudden and she died less than a day and a half after being diagnosed with Strep A. My heart goes out to anyone else who has gone through this; if you need to talk or simply want to listen, please mail me at YoungRobertson@bc.sympatico.ca Take care, Christy

I'm from: Kamloops, British Columbia, Canada

Email: - YoungRobertson@bc.sympatico.ca

How I found the page: - just looked it up

Apr 30, 1999 - 02:56

My name is: Terry

Comments about the web site: Contacted NF 2 days after donating a kidney to my sister. In ICU for 25 days.

I'm from: Canada

Email: - Terry@Inter-pc.com

How I found the page: -

Apr 30, 1999 - 03:03

My name is: Terry

Comments about the web site: Contacted NF 2 days after donating a kidney to my sister. In ICU for 25 days, most of it on life support. skin grafts from legs to 30% of my body.

I'm from: Canada

Email: - Terry@Inter-pc.com

How I found the page: -