NNFF Dedication - Theresa E. Shoup

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Theresa E. Shoup

March 30, 1951 - October 15, 2004

This dedication is for my Mother, Theresa E. Shoup. She was born March 30, 1951. She was diagnosed with NF in May of 2004. After a 5 month battle, with 5 different debridements and 6 skin grafts, she finally got an infection in her lungs and blood that she could not fight off. The doctors tried Xigris, which is some new type of SUPER DRUG! It was working, but a side effect is free bleeding. Sadly, she passed away Friday, October 15, 2004, at 10:38 AM e.t.

One thing I want to make known to others when my Mother was first diagnosed with the NF, the doctors that were treating her were at a small hospital and had never seen the disease. They were under the impression that oxygen killed the virus and only opened up the spot on her back that was about 4 to 5 inches across. Now knowing that protocol is immediate debridement, she quite possibly could still be here if she would have had the bad tissue removed then. Instead, of they let her lay in bed for 3 to 4 days, until she was too bad off for them to take care of her and we had to have her life flighted to a larger facility. Once there, she had an emergency surgery where they had to remove her whole back down to her ribs and organs, and most of her stomach and intestines. So if this information could be passed on to others, that if diagnosed they must immediately remove the area!

Thanks for the website, I only found this site about a month or two before my Mother passed away, but it gave me a lot of great information to pass on to the rest of my family. Great JOB!!

Robert E. Shoup Jr.
shoupsters@netzero.net
Lake Butler, FL
October 2004

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