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NEW STUDY
HAVE YOU OR A LOVED ONE SUFFERED MORE
THAN ONE EPISODE OF NECROTIZING FASCIITIS?
Your assistance is urgently needed
The National Necrotizing Fasciitis Foundation is currently assisting a renowned research team in a very important study regarding individuals who have suffered more than a single episode of necrotizing fasciitis. Recurrences of NF are quite rare. The study is an attempt to identify such cases in order to learn more about possible predisposing factorsunderlying such recurrences as well as their manifestations and outcome.
If you feel you or a loved one has experienced more than a single episode of NF and are willing to consider participating in this important study, please contact our research assistant Louise Santos at grandma233@comcast.net for more information. Thanks very much for your consideration of this request to participate in a study that I hope will expand our knowledge of this life-threatening disease. |
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Order our book
"Surviving the Flesh-Eating Bacteria"
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Add your name to our state-by-state support, email me at the address below. Remember to tell me what STATE or COUNTRY you are in!
NEW STATEWIDE SUPPORT PROVIDERS SOUGHT
We are looking for volunteers who are willing to let us post their email address so that others can contact them for simple conversation in regard to NF support. You do not have to be knowledgable, and in fact, it isn't to provide information except as it pertains to you and what you know to be true. But, it is to simply connect survivors or family members of those who did not survive so they can feel a connection with others. If you are willing to let us put your name in, let us know. We would be happy to have more than 1 person from each state. The eventual idea is to form a chain and have a support group in every state and even other countries. Please email me at nnfffeb@aol.com and entitle the email "NF Support." Remember to include what state or country you are in.
ADD YOUR NAME TO THE FRAPPR MAP
Where Does NF Strike? Everywhere, around the world and in all 50 states. You can add yourself to a map at frappr.com by using the map above and if for some reason that does not work by clicking on this link: NF Map The following slides are some of the people you'll find on the map. (Note, this is NOT the same as the state-by-state support. You must email me to be on the "state to state" support list described in the section above.)
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NEW RESEARCH |
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Our Mission: |
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To educate for public awareness, recognition of symptoms and preventative
measures; to offer resources; and to offer support for those affected
by necrotizing fasciitis. |
| In
January 2007, Linda L contracted NF. Read her
story.
In October 2006 Brandi Houser contracted NF. Read her
story.
In November 2006, Four and a half month old Baby Kaylee contracted
NF. Read her
story.
Melissa "Lisa" Branham courageously had multiple amputations
due to NF. Read her
story.
More Survivor Stories
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Please
take a moment to honor those who didn't survive NF
| - March 24, 2007 |
| - March 23, 2007 |
| - March 19, 2007 |
| Donna Mae Vaisanen - March
15, 2007 |
| - November 15, 2006 |
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FUND RAISERS NEEDED
DO YOU HAVE VIDEO EXPERIENCE?
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We are
working toward a $50,000 goal of raising money to produce
a video and distribute it. Can you help either by fund raising
or by lending your talent? |
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Contact
Donna at nnfffeb@aol.com
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ORDER OUR BOOK |
| "Surviving The Flesh Eating
Bacteria"
NNFF co-founders Jackie Roemmele and Donna Batdorff collaborated
on this book that outlines personal accounts, as well as
all of the stages of NF, as well as recovery both physical
and mental. It is the best and only book on the subject
which addresses NF from a clinical as well as personal viewpoint.
If you want the best possible information on NF, the facts,
causes, and effects, this book is a must read.
Order by mailing a check for $17.95 (non autographed) or
$20.00 for an autographed copy to:
NNFF c/o Donna Batdorff
2731 Porter SW
Grand Rapids, MI 49519
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ORDER BILL THORNLEY'S BOOK |
| "NF The Disease From Hell"
Bill Thornley, whose wife passed away as a result of NF,
has chronicled her story in this heartfelt book aptly called
"NF, The Disease from Hell". Bill is willing to
donate part of the money from book sales to the NNFF. We
are happy to help him promote the book and further spread
the word about what NF is, how it behaves, and how it has
changed his life forever.
The book is $12.00 plus $1 shipping, or $13 total. To order,
please contact Bill at:
Bill Thornley
28645 Crescent Lake Lane
Webster, Wi 54803
Phone: 715-635-7255
E-Mail: bbtddr881@hotmail.com
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ONLINE SUPPORT GROUP
One of the most frequent
requests we get is for a support group. We do not have individual
support groups, however, we do have an international web-based
support group. If you are interested in joining, please contact
Marla James at ghostlady@socal.rr.com.
CONTACT NNFF
To contact the NNFF
for general questions, please contact, Donna at nnfffeb@aol.com,
NNFF Co-Founder. Please try and be specific in your question so
we can best help you. Be sure to put NNFF in your subject line,
in this day of spam, things get thrown away or even moved to a
"spam folder" if they are not recognized in some way.
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